New to Moms with Children with Vascular Birthmarks

Michele - posted on 06/09/2009 ( 3 moms have responded )

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Hi, My name is Michele and I have a son named Alex who is 5, he has a Port Wine Stain on the right side of his face. We are currently using laser therapy and the aldara cream. I would love to meet other moms with similar stories!

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Maryann - posted on 12/02/2010

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Hello my Name is Maryann and my daughter Gracie was born about three weeks ago and she has a very deep red/ purple port wine stain on the right side of her face. It is quite large and cover her entire cheek from her lower eye to her lip. I feel very helpless because her Dr. doent seem concerned and is just now refering us to a dermatologist. I am very concerned that it is speading ( very slightly) and it also seems to be getting a bit puffy around her lower eye. Any support, advice, resources that anyone can offer is greatly appreciated.

Ashley - posted on 05/21/2010

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I know you wrote this a while ago but how is your sons laser treatments going?! My daughter also has a PWS it is nice to meet other moms who have kids in the same situation so we can all support each other supporting our kids!

Ashley - posted on 06/09/2009

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Oh I am so glad that you joined!! I too have been looking for other moms. My Daughter is also having laser treatment and her port wine stain is on the left side of her face. How is Alex doing with his lasr treatment?

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