vascualr birth mark

Ashley - posted on 10/30/2009 ( 12 moms have responded )

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What kind if vascular birthmark does your son daughter grandchild etc have?!

12 Comments

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Carol - posted on 08/16/2012

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My 16 month old daughter has what seemed to be a port wine stain that covers most of her left leg. She has had three laser treatments that did not do much. Now it is called a venous malformation since it is deeper than the capillaries. Has anyone had any treatment or know anyone with this type of birthmark?

Judith - posted on 04/25/2012

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I have two children a boy age 3 and a girl which is 6 months old and she was born with a Strawberry hemagioma birthmark and it was very tiny at birth but grew to become much bigger in size.. and omg I am so happy there is a place like this where we can all get together and talk about this because yes it's stressful and as a mom you worry about everything and when you have a child that has a birthmark that is a little bigger and more visible than others it gets people asking questions and asking "Whats wrong with her or him ?" and you just want the questions and looks to stop but yet you want people to know what it is and get more people aware of this ! Birthmarks are BEAUTIFUL and so I started a community on here before I found this one and it's called "Beautiful Birthmarks " and is found in the support ! We as mothers with beautiful children with amazing birthmarks need to stick together and be there to help each other out !!! I'm so happy and relieved I found this website !!! Her birthmark is on her forehead right above her left eyebrow and so pretty !!

Jody - posted on 01/24/2011

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my 91/2 month old daughter has a flat red birthmark between her eyebrows. she has had it since birth - it is the size of my small fingernail - really tiny. i'm told it will fade by the time she is 2 or 3 years old - i'm not convinced it will - she is an absolutly geogeous baby and the only things that offend me are when people make fun of it. truely these people are insenstive and don't think before they open their mouths

Maryann - posted on 12/02/2010

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My 3 week old daughter has what they are telling me is a port wine stain. below her right eye covering her cheek all the way down to her lip.

Michelle - posted on 02/06/2010

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Robyn, My daughter is only 2. They are hoping everything except the PWS will clear up on its own around age 7-9. The PWS are only on the bottom of her feet and don't seem to give her much trouble. They said to leave well enough alone.

Robyn - posted on 02/04/2010

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My 23 yr old has Venous malformations on the back of his righ leg extending the length of his calf : Described as PWS that can be deep, superficial, diffuse or localized. They commonly appear as bluish, spongy masses that can be compressed easily. When the child is lying down or crying, the lesion fills up with blood and the mass becomes fuller. Occasionally, hard lumps can be felt in the malformation, these are calcified nodules.



•The most common areas affected are the cheek, floor of mouth and extremities.



•Pain and swelling are common complaints



•Klippel-Trenaunay Syndrome (KTS) is a venous-lymphatic malformation of the extremities, most commonly of the legs.



•Venous malformations can get worse during puberty and pregnancy or as a result of infection and trauma.



He has had a skin graft done in the endeavour to remove it. This was not successful and extremely invasive and painful. It has been suggested that he try and have this removed again but it will involve the removal of a part of the muscle as well.

Love to hear some of the treatments offered for your children so I can pass this info on to him.

Michelle - posted on 01/25/2010

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my daughter has portwine stains on bottoms of her feet and her hemangioma covers her from her waist down Having trouble finding other kids who have hemangiomas in same area and as large

Ashley - posted on 11/06/2009

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my daughter has a port wine stain and is receiving treatment for it. Is your daughter able to receive treatment?

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