moms with kids with Incontinentia pigmentia

rare gentic disease


hi all

I am mom to three, and our youngest, 6 yo, has IP. She doesn't "officially" test for it, but manifests everything and then some. She is a love bug, but she has significant...



I just found out Friday dec 4th my daughter has this condition i never herd of it before. i am waiting on getting appointments to see more specalists to see how bad it is. my...