getting pregnant with N...

Rachelle - posted on 01/24/2010 ( 3 moms have responded )

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Please help...I would like to get pregnant with my second child...but i have to go off of my meds (Adderall, and Provigil) because they can cause miscarriage, brain damage, and death of my baby...i already had a miscarriage in Sept...didnt know I was PG so i didnt go off my meds...not sure if its a coincidence...anyway...I am scared to get PG cause I dont know if i can handle 9 months or more of no meds...I am tired ON my meds...what will I be if i am OFF my meds???? Has anyone gotten PG AFTER a diagnosis of Narcolepsy? How did you handle being PG with no meds? seems no drs know about this disease and pregnancy...any advice will be helpful...thank you

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Cath - posted on 02/11/2011

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I have been pregnant 3 times since being diagnosed. I am severely sleepy, falling asleep upto 20 times a day when unmedicated.

The first time I came off my meds as soon as I found out I was pregnant. I was still working and my employer provided me with a chair with arms so I did not fall off and a thin mattress under my desk. I fell onto it several times and asleep at my desk on top of that. I never worked when pregnant again.

During my 3rd pregnacy I investigated the taking of meds during pregnancy - I was taking ritalin at the time and my other 2 children where still pre-schoolers. Obviously no trials had been done on humans. Some mice trials had been done and deformities had occured in foetuses but only when they had been given 70 times the max dose. I continued on my medication until the last trimester and then weaned my daughter off inutero. My specialist had had a few other patients do the same, all of us have had healthy baby's.

I have never taken medication for the depression instead prefering to run - I find this works it out of my system. Obviously pregancy and running don't go so well and the depression has been an issue, but having kids who love you unconditionally and who are sad when you go out even just for an hour was always enough to drag me through.

I 'managed' pregnancy without meds but that was all; I did not enjoy it, I did not function properly, I put on 32kg each time, but you know what, it was worth it. 9 months of hell (plus a bit as I tried to breastfeed unmedicated) for a lifetime of fun, laughs and memories bringing up 3 great kids... would not change it for the world, and if finances allowed I would do it all over again.

Good luck
CT

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Kara - posted on 03/08/2010

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Rachelle I have been med free for 4 weeks (not because of trying to get pregnant but because of side affects of ritalin) I currently take Siberian Ginseng. It is all natural and has no side affects. I take 4 droppers every morning sometimes in afternoon I take 4 more. You can take it up to 3 times a day. My boyfriends sister purchased it online from NectarEssence of creation. I have never felt better. You cant take to much if you take more then your body needs it will get rid of it. I still take a nap if I need to. I havent had any problems sleeping at night. I also eat light during the day... try to stick with alot of raw fruit and veggies. I know they say meat for protein I get tired when I eat meat during the day I think due to the digestive process. God Luck and God Bless

Lauren - posted on 02/27/2010

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I have been pregnant after my diagnosis, twice! I was diagnosed in high school and went on provigil immediately. Almost 3 years ago I went of my meds and got pregnant. I had a wonderful pregnancy, I actually think your hormones help out a little bit. You of course are very tired but I could surprisingly function alright while I was pregnant. I finished my student teaching portion of college at this time where I was up for 8 hours every day and I actually think this helped. It is different for everyone but I had a positive experience. I don't know what you do for a job but your employer may have to be more flexible for you, but maybe not, maybe your hormones will help you out too!!! Don't let the narcolepsy scare you when it comes to pregnancy. It is hard once you have the baby ( I now have a 2.5 year old and 18 month old) and they start to have more energy, but you learn to cope and it is amazing. Good luck, if you have any questions feel free to ask because there aren't many people in our situation!

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