Hi. my name is Rachael

Rachael - posted on 01/16/2009 ( 13 moms have responded )

33

123

2

Hi, My name is Rachael MacSwain. I am a 28 year old mother of one. I live in Montague ,PEI.
I was diagnosed with Narcolepsy when I was 17. I had the symptoms for probably 6 years before I was diagnosed. The doctors couldn't seem to figure out what was wrong with me. It was my third grade 10 Math teacher that figured it out. She had seen an episode on Date Line one night about it. One evening she called my mom and told her about it and she knew I wasn't falling asleep because I wanted to and she seen how frustrated I would get when I did. All my other teachers just thought I was dumb and lazy. I knew I wasn't because before my symptoms started getting bad and I couldn't stay awake in class I was always an honor role student
The first thing the next day my mom went to my aunt's house and checked Narcolepsy out on the internet. Sure enough it explained me right to the T. S we made yet another doctor's app. and took the print out with us. My Dr. said he had never even thought of Narcolepsy. That he had only 2 patients in his whole career with it. So right away he sent me to the sleep clinic in Halifax, NS Where I was finally diagnosed.
My mom felt really bad because when I would take a Cataplexy attack (witch I did quite often) she would say to me "stop your foolishness". I told her not to feel bad about it. She had no way of knowing.
When I was diagnosed they put me on a medication that wasn't even out on the market yet. It was still being tested. For the first week I felt great. I counted the hours I was awake at a time. Then after that first week it's like I became immune to it. For years I kept taking them anyway because there are only two meds available in Canada for Narcolepsy and Ritalin is the other. I refused to take Ritalin because I had heard so many things about it and I knew it was a Narcodic. After a while I had no choice. It does help some but I still fall asleep all the time. I did manage to finish High school thanks to an alternative program called Project Discovery. I could work at my own pace. My marks went from well below failing to well above average.
The thing I find the hardest of all is trying to read to my daughter or play a game with her or try to help her with her homework or watch a movie with her. She says "why are you always, always tired? or "Sometimes she'd say "can't you read a book to me without falling asleep for once?" I try to explain the best I can. Now that she is older she deals with it much better but she still gets frustrated with me. Sometimes she wants to go places and doesn't understand that I can't drive very far. I won't drive very far. A couple of years back we were gonna go to the fireworks in Charlottetown but the person who was supposed to come with us backed out. That's a thirty to forty minute drive. We tried to find someone to come with us but it was too late everyone was already gone in. The two of us just sat together and cried. I would love to be able to just get in the car and take my daughter places without having to depend on other people to come with me or take me.
I thank god everyday for my healthy little girl and pray that she doesn't end up with it. Though if she does at least we'll know what it is. She won't have to go on for years wondering what is wrong with her like I did.
I do realize I could be much worse off. It just gets so frustrating at times. People around me laugh at me and make fun of me all the time. I work as a seasonal laborer and I get some pretty funny looks and comments from the people that don't know me well when I'm standing there sleeping. Many People have never even heard of it let alone seen it. I myself don't know anyone with the it and would love to get to know some people. No one really understands unless they have it. I have had people come up to me and say "I can barely hold my eyes open today. I don't know how you do this all the time" I just smile and say "I have to. I just learn to deal with it the best I can.
Well I've rambled on enough. I hope to hear from other Moms that might have the same problem.

13 Comments

View replies by

[deleted account]

First, I would like to thank you, Rachael, for starting this group. I would also like to say hello to all the other moms & if I could I would buy you all a bunch of flowers or coffee (haha) or something, just for being strong & being you & pushing through it!!

I am a 26 year old single mother of 2 boys. I have N. & possibly have some mild C, but my doctor is still "unsure" about that. lol.. Talk about being in limbo! My onset seems to have been when I was in about 7th grade. Much like many others I went from a good student, getting terrific grades, to barely passing. I seemed to forget things all the time, couldn't focus, my night sleep was erratic & my days were a blur that I could hardly remember. I also, at that time, started having the hypnagogic hallucinations, which I have very very often. They started out mainly auditory & I truly thought, at first, that it was just my friends messing with me. I didn't always noticeably fall asleep at my desk, but 9 times out of 10 I would recall only the first 5 - 10 minutes of class... not very easy to pass a test, or even do homework, when you have literally zero recollection of anything that was taught! High school was even worse. I hardly ever made it on time & by my sophomore year I was hardly even bothering to TRY anymore & my "nightmares" (as they were called by many doctors for YEARS when I tried to describe the hallucinations) were getting more frequent & more.. let's say 'involved'. I was misdiagnosed with all sorts of things - ADD, bipolar, insomnia, etc. etc. but never really treated for anything. My mum had zero patience for my "behavior" & so it was always chalked up to me being lazy, rebellious, whatever else.
When I was 16 & in my junior year of high school I got pregnant. I couldn't get enough sleep. It was even more difficult to wake me up in the morning and when I did finally get up it didn't last long. Anytime I ate anything I had not a hope in the world that I would stay awake, let alone coherent. Of course the doctors just figured it was the pregnancy. I had my son, at 17 & that's when it really started getting scary. I started falling asleep eating, falling asleep nursing, constantly walking around in a fog. Doc said it was the baby blues... then eventually it was just the stress of being a young, single mom. Thanks to an alternative high school program we had locally at the time I graduated & I even went on to get a financial degree.
When my son was about 18 months old he began to show signs of something being "wrong". Over time I found out he has Asperger's Syndrome. I pushed myself as hard as I possibly could. I worked a part time job - it began full time, but I could not get there on time/stay awake & properly functional full time - & busted my butt helping my son. For awhile it seemed tolerable. But, the hallucinations were so frequent & so frightening that I was still searching for answers on that. Doctors kept telling me it was just nightmares from stress, no matter how detailed I tried to be in describing them. I even started to see a psychotherapist because I was beginning to believe I must be schizophrenic! (by this time I had already been cleared of all previous misdiagnoses)
I continued to struggle, getting more & more exhausted, more & more tired, more & more erratic night sleep. When I was 22 I got pregnant with my second son. While I still have absolutely no idea exactly why (though I do have some theories) for some reason I felt a bit better throughout the pregnancy. After I had him, however, I went downhill very quickly. It was like I had become an entirely different person. I very rarely had any "life" to me anymore - no animation. I was very literally, very constantly walking around like some sort of zombie. I talked to doctors, I talked to counselors. But, I was in an abusive relationship & I had 2 kids so once again stress was the supposed culprit.
I ended my relationship & started feeling better emotionally & for a short (very short) time I thought maybe that really was it. However, I had gone back to work & now I could not stay awake no matter how hard I tried. I finally begged my (new) doc to refer me for a sleep study when one morning after getting my older son on the school bus I sat down to read my little one a book & the next thing I knew my neighbor was waking me up because my 2 yr old had been outside in the road. I thought I had sleep apnea... I don't, at all, actually, just N.
Like so many others, the diagnosis ALONE was heavy, but also uplifting... at least I knew why. I knew what I WASN'T, but now at least I knew a little more. For me, finding out what the "nightmares" really were was probably the one of the happiest moments of my life, lol.. or at least most reassuring.
I have my good days & I have my bad days... every now & then I will have a day (more like a short period of time in a day, lol) where I will not only be awake, but even have some energy & be animated. I miss the old me, A LOT. I feel kind of like I used to be this really cool toy with awesome battery powered features... but no one ever replaced my batteries, so my power source just keeps slowly fading. I do take meds, I take Provigil twice a day & I am happy with how they work. I don't get energetic, but I can mostly stay awake & I am far more coherent much of the time. I was always very naturopathic... so making the decision to take meds was a very tough one for me, but I definitely don't regret it. I have been trying so hard to be able to avoid taking sleep meds for at night... but, that isn't working so much, so that is something I will have to look in to.
I am really happy to have found this group. Again, like sadly so many I don't know a single other person, let alone mother, with N. I feel pretty alone & misunderstood often times. I have no issue telling people that I have it.. mainly because I like to educate people & I am already used to that whole thing with my son's Aspergers. But, it is true that very few people know a single thing about it & often times they don't seem to take it seriously. They seem to be watching for me to fall over while walking or something & apparently that's all they think there is to it, lol. I get frustrated, sometimes, when people say "I wish I had N"... why would someone wish this on anyone, let alone themselves? It shows they don't take it seriously & that sucks. I also wanna throw things when someone says "yeah, I'm pretty tired too" or "why don't you just take a nap?" I try to be calm & patient about it though... after all... I guess I was once just as ignorant about N as they are until I couldn't be any longer.

Lisa - posted on 08/05/2009

1

2

0

Hi, My name is Lisa. I am so happy that I found this site today. I found out I had narcolepsy my senior year of high school. I am now 40 years old, and have learned to live with it, there are worse illness's in life I could have. I have my masters degree, work full time as a teacher and then come home to take care of my husband and two year old daughter. I have tried almost every medication available for narcolepsy. The one that I found works the best is provigil (gives me an alert feeling), but I also need to take adderral with it to keep me awake and vivactil for my cataplexy.... I will post more about myself next time. I just want to make sure not all of my friends on facebook can read this. Yes.... after all these years not everyone knows about my narcolepsy.

Laura - posted on 03/09/2009

31

13

3

Julie, I have found that the Effexor XR works for me. I am now on Provigil and I think that is helping. i also take Lamictal bc due to things that happened in my past i went through a severe depression and did not want to live after being DX and about all the abuse I had suffered. One day i told my husb I wanted to run my car into a tree. I was so confused and having strnage seizure type activity that was causing me to thrash so hard in my sleep that I would hurt myself. The Lamictal helps to stabilize my mood. I have been in counseling for the PTSD. and I do a certain therapy that is called EMDR. This separates the emotion from the painful memory. Try to Google it this saved my life! Did anyone have something traumatic in their past??

Look forward to keeping in touch. Laura

Julie - posted on 03/08/2009

75

36

5

oops I hit the wrong key.  ok where was i.  yes, the cleaning thing.  i fade quickly and don't get things done that i want to.  i find that my brain gets a little fuzzy and it hinders my thoughts on how to get and stay organized.  it is very frustrating for me. 



I am very thankful for a family that is so understanding.



yes i also struggle with the cataplexy.  i have had the droopy head/buckling knees when laughing but never actually fell down until a few months ago.  it was when i was getting off of the one med. and going on to the other.  neither my husband or i had ever experienced it so it was scarry.  my husband made me laugh and i fell to the floor.  he continued to egg me on without knowing that it was sending me deeper into the cataplexy state.  I could not move or talk, but i could see and hear.  it was no fun.  that has been my only experience with catoplexy thus far.



I do have very vivid dreams and talk in my sleep quite often.  It got so bad for a week or so that my husband was so tired because i would wake him up, he would try to wake me up and i would continue talking in my sleep and he could not get back to sleep.  i started praying about the talking in my sleep and my husband said i have not been as bad lately.  either i don't talk in my sleep at all or it is after he is already awake for the day, so at least he is not loosing any sleep.  well my bread is almost done so i had better go to bed.  i look forward to chatting with you both soon.



julie



 

Julie - posted on 03/08/2009

75

36

5

Hi Rachael and Laura,



Sorry Rachel for not responding sooner.  I actually closed my FB account, but then thought of all the people I would miss communicating with, so now I am back. 



You asked me what meds. i am on.  I take provigil for the Narcolepsy and Effexor XR for the Catoplexy.  I have only known about this disorder for a little over a year so I am still trying to figure out the best way to take the meds.  We ended up moving from Michigan where I was diagnosed to Indiana and it is so hard to find a new doctor.  I finally found one that I think I like and she sugested that I go off of Effexor onto something else with less side affects.  But  that did not work for me, so I went back  onto the Effexor XR and now things are better. 



When I was first diagnosed I was walking on cloud 9 and once I started my meds, I felt like a whole new person.  In fact my family would make comments on how I was totally different.  Now that I have been on the meds for  a year, I find myself getting off of that wonderful cloud 9 as reality sets in that there is no cure for this and I have to figure out  to adjust my life around this "blessing".  I have to look at it like a blessing otherwise it will drive me batty.  I so get the frustration with not being able to spend time with your child without falling asleep at some point.  I get so frustrated with not being able to read a book, watch a moving -  all those things that have been mentioned.  My kids understand that it is something I can't help and I am very thankful for my oldest daughter who is 10.  She is like the little mother when I am in my "N" state as we call it.  She is so helpful and reads with my youngest and even helps her with her homework if I start to fade.  It is frustrating.  Before I knew what was going on, I would think I was the worst Mom in the world.



Actually, I felt like a complete failure.  I felt like I was failing my husband, my kids.  I felt like I was just lazy 'cause I was always sleeping and missing out on "life with my family".



I still get very tired and I find that I can't get involved in too much outside of my home right now because I just don't know when the big "N" is going to show up.  I don't go on field trips with my kids 'cause they are usually too far for me to drive and I won't be a driver for trips. 



I am begining to realize that I need to go to bed early.  Don't look at the time I am posting this.  If I go to bed at the same time every night and wake up at the same time every morning, I tend to be o.k.  I sometimes need to take a nap in the mid-morning and for sure need to take one from 2pm - 2:30pm before I go pick up my kids from school.  If I make sure to take my meds in the afternoon and take that short nap, I can make it through the afternoon into the evening. 



My husband's comment when I was diagnosed was"well that explains a lot".  He has and is great with me.  He sometimes does not understand that just because I am on meds, that I will still fall asleep at strange times.  I get frustrated at night because we will be watching a show on TV and I will fall asleep and then when I wake up he is already in bed. 



My biggest frustration comes with keeping up with the house work.  I find that in the morning I am very energized to clean , but tend to fade



 



 



 



 

Laura - posted on 03/08/2009

31

13

3

I am on alot of meds. provigil, xyrem which is known as ghb. effexor, lamictal, seroquel. i also suffer PTSD from abusive relationships. you might see about seroquel at night. it helps to knock me out at night, otherwise i would continue to stare at the ceiling all night. yes i have trouble with nursing and at times people try to get rid of me, bc sometimes i can not keep up. i do have to check and double check things, like if i fell asleep and continued an activity. i did talk to another traveling nurse briefly, but no one else.i heard of a surgeon where i used to work and they would find him in strange places asleep. omg-lol. i would love to be friends.

i googled PEI. its beautiful. Laura

Rachael - posted on 03/07/2009

33

123

2

I hear ya about the walking around in a fog and being somewhere and not knowing how you got there. It's freaky. Do you mind if I ask what meds you are on? I take Ritilan and Chlomipromine. They work to a point. I'm much worse without them but I wouldn't mind them working better. You're a very strong woman. I hope we can become friends and I can learn from your strength. Do you have any problems nursing? Like falling asleep whle filling a suringe or anything? I used to have a neighbor that was a nurse and she said she worked with a woman who suffers from N and that used to happen to her. She also said that she would be doing her paper work and dozing off and it was like she just kept on writing. Or if she stopped when she came to she would keep writing like she never stopped..lol I know that happens to me. I have a very hard time trying to help my daughter with her homework. I have heard of a few people through friends I know that suffer from N but I have yet to come face to face with someone else. This is as close as it gets...Do you know anyone in person?

Hope to talk soon. Rachael

Laura - posted on 03/07/2009

31

13

3

Most days I manage well on the medication. I may be going along and not know how I got to a certain place, and that upsets me. I can feel my sleep attacks coming and it makes me axious bc I never know when it will hit and who will be around. The need to sleep makes me axious too there is never a good time to fall asleep in public.

I told my Doc that I am in a fog all the time and tired. He said he rarely hears a person w N that says they feel good all the time.

I just decided nothing was going to stand in my way. Our minds are mini computers and I tell my brain what I want it to do. Sometimes it works. I just stay positive and if I fail, well I fail trying. Then I pick myself up, brush myself off again.

I learned we can push ourselves to a degree and have to keep moving or we as persons w N can gain weight, have depression, develope DM, our metabolisms are slower also, just from the condition itself. There are chemicals missing in our brains that are supposed to keep us awake, but tend to be like wires that are crossed and instead we fall asleep.

Most people will be awakened by caffeine, but it will put us to sleep.

Well now I am rambling, but I have done a lot of research and can finally share with others what I know.

Hope to hear from you soon. Laura

Rachael - posted on 03/07/2009

33

123

2

Hi Laura, I'm glad you decided to join. It is tough when you feel completely alone. Kudos to you for raising three children and being a nurse!! I work in a fish plant and am scared to do anything else. I know I can't stay awake all day standing, sitting, walking it doesn't seem to matter. Who else would want to hire me? I would Love to go back to school but I know I couldn't handle a class room setting and the courses available in my area are slim to none. I would have to drive 45 min. to take any worth while courses. That I won't do. Too far. I would love to say I won't be in the fish plant forever but I'm afraid I will be. How do you manage? I love hearing stories like yours cause it gives me a glimmor of hope. Hope to keep in touch. Take care.

Laura - posted on 03/07/2009

31

13

3

Your story so like mine, I keep reading an saying yeah, yeah, me too!! I had three kids in three years and thought most of the time I was loosing my mind, then my present and wonderful husband told me to get a sleep study. Dx w severe N and C. Things make sense, but it is hard out in the world and working as a nurse and not wanting anyone to think of me as "defective". I have made so many excuses for my behavior or lack of it. Thanks for your story and I am so excited that I found this group since I have been searching so hard.

Laura - posted on 03/07/2009

31

13

3

I was diagnosed 2 years ago with severe narcolepsy. I still feel weird about it and try to come up with other reasons for why i act the way I do. Somehow I made it through nursing school and raised a bunch of children. It just seemed like one day I was sick all of the time and lost a lot of weight and I was falling all the time and hurting myself. Thats when I found out. I was floored, I had no idea. All my life I was called lazy and that I did not pay attention and made fun of. I still don't want to tell anyone, because that might bring back all the feelings from when i was younger.

Rachael - posted on 01/20/2009

33

123

2

Hey Julie, I am so glad to hear from you. I was beginning to wonder if anyone was going to join.
It's funny because when you were explaining your night time sleep, it sounded just like me. I hate those nights when you feel like you've been asleep for hours when really it's only been a half hour or so. Thinking to myself, oh man, another 4 hours to go, Come on already!
Do you still fall asleep much even now being on meds? I do quite a bit. I have my good days and my bad days. There is the odd day when I don't fall asleep at all (very rare). I love those days! I've been back tho the Doctor few times but he says I'm taking the highest dosage aloud that there is nothing else he can do for me. He said I had to plan my life around naps. As you probably know, much easier said than done.
A while back I read an article about a man that took both Ritalin and Alertec and he said taking both of them he felt almost normal, so I thought I'd try. The Doctor said I had to wait ant least an hour between each med. I didn't find it did anything different at all. I thought when the man said he took both he took both not one at a time. I guess some things work better for different people. Don't get me wrong. I do find a difference without my Ritalin, but Not the difference I would like to see. I can take my Ritalin and fall asleep shortly after. If you don't mind me asking, what meds do you take?
The wrong time of the month is the worst for me. I might as well stick my pills in my ear..LOL How bout you? Do you find it worse around that time?
I'm sorry if I'm rambeling. I'm just so excited to talk to someone who totally understands me and what I go through. I have really good friends and a great family but I know they get very frustrated with me, They try to understand the best they can but you know how it is.
Do you suffer from Cataplexy too? I find that part really hard. I am the kind of girl that likes to goof around and make people laugh. The pills I take work for the most part but sometimes I still feel it. Like when I'm at work and I start to laugh sometimes my head drops and my knees give out and I can't talk. I usually have to put down whatever I'm holding or I'll drop it. So imbarrasing. (sorry about the spelling) A lot of the time it's not even noticed except for my closest friends that have seen it before. But I feel like a fool. When I do take bad ones, I sometimes cry after. It's just so humiliating when it happens and I get so frustrated because I'm on meds and it shouldn't happen at all.
I find I read all kinds of articles and people say now that they are on meds they feel great. So why can't I??
I would love to have more kids but I would have to stop my meds to do so and I don't think it would be fair to my little girl. She goes through enough when I'm on them. How do your kids and your husband deal? My boyfriend doesn't deal so well. We argue sometimes about it. He just don't get it!! Sometimes though I think he picks and argument with me when I'm dozing on purpose. It seems when I'm dozing and he pisses me off, I come around. But it does piss me off and sometimes it hurts. He gets mad at me sometimes cause I'll be on the phone with one of my friends or something and I'll be fine. When I get off the phone he tries to have a conversation with me and I doze. Or He'll want me to do something and I'll doze. He's like "you're fine when your on the phone then you get off and you falling asleep" It's like he thinks I do it on purpose. He doesn't get the concept "I can't help it". I don't know why it happens it just does. I have very low motabolism too and he thinks since I'm not working right now I should have the house spick and span everyday. I don't know about you but, I have to really be in the mood and when i am, you can't stop me. But I don't feel like that very often. I mean don't get me wrong I still do my house work that needs to be done but to get down to the nitty gritty I have to really be feeling it. Does your husband ever give you a hard time? Do you ever find it hard to get the get up and go feeling to get things done?
Hallucinations. Do you ever get them? I find I get them when I'm trying to fight a sleep attack. I will see things and hear things. When I'm at work it's pretty funny. I was wringing legs (lobster) one day and I was dozing and I caught myself. I was using the leg to mix Tori's baby cereal. Sometimes I would set shells aside instead of throwing them out or put them in my bowl or steal someones meat from beside me. If I'm working anywhere with a marker, like taking weights and marking them down or writing weights on the side of boxes or doing up receipts, that's the funniest. I will catch myself most of the time but sometimes I miss it. I will write just random things that have nothing to do with my work. Like names or numbers or I'll just scribble or draw something. One day I made out a receipt for the rack we just finished and instead of putting the number of bags on the rack I put, HA HA. Still not sure why..LOL Does anything like this ever happen to you?
Do you feel your sleep attacks coming on or do they just happen? A lot of the time I feel them coming but sometimes I'll feel totally fine and next thing I know I'm waking up wondering how long I've been out. Some of my closest friends and family can see it in my eyes before I can even feel it.
W speaking of dozing, I'm feeling it now. So glad you're here. Looking forward to talking to you again.

Julie - posted on 01/19/2009

75

36

5

hi rachel,

i was wondering if i would find any other mom's with narcolepsy. you are right, people are not very educated about narcolepsy and all that comes with it. i could relate to your life story.



here is my story. i was fine during high school. i don't have any memories of falling asleep during those years. my senior year is my first memory of something not being right. unfortunately during that time i also got chemical poisoning from my silkscreening class, so we thought that my symptoms were due to that. during this point in my life it was not so much falling asleep at the drop of a pin, but i could not sleep through the night. i would wake up several times every hour during the night. which was a big frustration. i ended up in the hospital due to the chemical poisoning so no further testing was done to figure out why the lack of sleep.



someone with normal sleeping patterns might wake up in the middle of the night, look at the clock and think "great, i still have 5 more hours of sleep". for me, on the other hand, i would wake up and look at the clock and only 15 minues had passed. i would think "crap,it is only 12:30am??" and then this would repeat 20 minutes later through the entire night, night after night, year after year.



so then i go off to college and spend a lot of time sleeping. skipping clases to sleep. this is when i have my first memories of falling asleep during typical "non-sleeping" hours. i would sleep in the car if i was not driving, but thought nothing of it. college continued to be a challenge and i also struggled with the thoughts of "being stupid or not being motivated enough" because of my constant falling asleep. talk about being frustrated. my dad got very sick so after my sophmore year i decided to stay at home the following year and spend time with him. during this time my symptoms got worse and worse. there always seemed to be a logical reason for my being so tired. my father passed away about a year and a half later, so there was a good excuse. i broke up with a boyfriend which was hard to deal with. then it was moving across the country, trying to find a new job, new friends, basically finding a new life. and so life went with the falling asleep and not sleeping at night getting worse.



i got married in 1996, had three kids between the end of 1998 to 2001, all of them being c-sections, had other surgeries, had 3 kids in diapers and life went on. all during this time i was struggling with the thoughts of being a bad mom, bad wife. i also had/have a struggle with reading to my kids, because about three pages in, i am gone. late afternoons are the worst for me, and of course that is when the kids get home from school. last fall was the worst. my days looked like the following. get up, make breakfast, get kids off to school. i had to drive the kids 20 minutes one way to school. driving home after dropping the kids off what the hardest. home to bed, phone alarm on to wake me up in time to pick up our yougest from half day kindergarten. another 20 minute drive and off to make lunch. my daughter takes after her grandmy by being the slowest eaters in the world. after lunch we would go to my bedroom, my daughter would bring her homework, toys, coloring to my room and she would watch cartoons while i took my second nap of the day. alarm off to pick up the two oldest. off to after school activities, which could not be many, and then home to fall asleep at about 6:30 or 7pm. sleep until about 10pm and totally miss out of the time my hubby spent with the kids. up again at 10pm and awake 'til 3 or 4 in the am and start this cycle all over again. no wonder i thought i was going crazy. i went to my doctor again and asked for more test cause i was not making this up. still nothing. i did have to deal with some spiritual issues betwen me and God which happened at church one sunday in december. the following monday, i googled narcolepsy and started reading. it described me. within a week i was at a sleep study test both for obstructive sleep apnea and narcolepsy. turns out i am blessed with both. i can tell you just having a name for what the symptoms are without any teatment yet, i still felt a weight come off my sholders. i was not crazy. so since then i have bveen on meds and my life has turned 180 degrees. i realize there are no cures, but at least i can live a somewhat normal life. being able to play with my kids has become such a blessing to me. i am now 40 years old. lots of time has been lost and slepts away, however i know that God can use this for His glory and for that i can't wait to see what is coming arond the corner.



well, since i am about to fall aslep right now, so if i typed any jiberish,......i know you will understand.



look forward to hearing more of your story.

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms