Nuvigil-What works best for you and whatdo you do along with meds?

Kara - posted on 10/12/2009 ( 4 moms have responded )

19

26

2

I just started nuvigil last month. It is so much better then provigil. When I took provigil I was so irraitable, I would snapp in a second, I had headaches all the time, I couldn't eat, I didn't feel real focused (like everything was a haze), I would shake all the time, and couldn't sleep. The doctor gave me coupons last month and this month so didn't cost a thing. It is pretty new from what I understand. It also was a very easy transition from provigil to nuvigil. It was all the side effects disappeared. Magen who is also in our circle gave me a few all natural remedies. Which as soon as I get back from FL I am going to try. This past week I cut out all meat during the day. Stuck with only fruits and veggies. It actually has helped alot. I didn't feel so heavy. I have lost 7 pounds. I put on 20 pounds a few years ago before I knew I had Narcolepsy. There is a huge misconception about Narcolepsy. Yes people do gain weight (mostly at the peak of their diorder) but that doesn't mean because we all eat to much and no exercise. I eat like a bird. One of my docs told me the same thing that cause Narcolepsy also effects your eating. As far back as I can remeber, I would forget to eat all together and didn't realize it until I cook dinner for my family or food was right under my nose. When I had lunch when I was able to work I would sleep instead of eating. I have to set the alarm on my phone to remind me during the day to eat. Even if I only eat an apple that is better then not eating at all. Well thank you for reading have a blessed day!~ Kara

MOST HELPFUL POSTS

Kara - posted on 10/17/2009

19

26

2

When I first started provigil (which was the 1st med I took) I was a basket case really every little tap, noise, moving from someone else would drive me up the wall. I have one child and before meds I could have 20 kids at my house and not think twice about it. When I went to the doctor he chuckled and said Kara your brain has been asleep for so long your brain wouldn't process everything around you because it was to tired. Now it is awake and alert. It is processing all of your senses now at one time. Your brain is overloaded. I seriously was ready to scream. I couldn't wait for my boyfriend and son to be at work and school. I seriously would sit no tv, no music, no nothing, PURE SILENCE YAY. lol I still get overwhelmed I can't watch tv and have someone talking. I can't read and have noise in the backround~ it drives me nuts. But I will say on provigil I was ready to kill someone lol and nuvigil I am much more relaxed. About the weight I truly believe full hearted that when you are Narcoleptic that physical therapy should be one of our medical needs. Many of us have pain from muscle loss and our muscles need that rebuilding. If a person is in a coma they go to physical therapy to strengthen it their bodies again. So what about a person who sleeps 15 hours a day. I think it will give our muscles a good work out with a doctor and a good start to an exercise program w/o injury. Also it will help us develop confidence and a comment to getting are bodies healthy like we are getting our minds healthy. I actually write a congressman about the medical needs of narcoleptics (physically, mentally, and socially. Well enough to night I am ready to pass out. Hope to chat again soon. Thank you Bonnie and God Bless you & your family!

4 Comments

View replies by

Christopher - posted on 02/26/2013

1

0

0

I take nuvigil 150 mg worth as soon as I wake up. After about four hours I take 50mg later then before I go to bed I take serataline which is a form of zoloft which stops sleep paralysis. I find this works really well for me.

[deleted account]

Much of this Kara already knows, but for anyone else...
I take Provigil, have for about a year now (since my diagnosis). Personally, I love it & have very few, if any, side effects. I too am more irritable at times, but to me it seems more so because of finally being awake & alert enough to notice everything going on around me. One thing I will say, though... When I first went on Provigil I clocked hours & hours of internet research on it & found a really good forum in which many people on it said they noticed it seemed to work best if they did NOT take it 100% regularly... so that is what I do - there are days that I go totally unmedicated & days that I take 1/2 the prescribed dose & so on. That definitely seems to help.
As for Nuvigil - my doc did suggest it at one point, but I chose to stick with the Provigil only because it has been on the market a bit longer. From what I have read Nuvigil is a sort of derivative of Provigil, with Provigil being on the market for about 10 years & Nuvigil about 1/2 that time. My doc had suggested Nuvigil for me because it apparently lasts longer, so the thought was maybe I would only have to take one dose per day rather than the 2 I currently take.
I did want to say, though, Kara - you don't have to cut out all meat during the day. Meat has a high protein content, so for the most part it should be an energy booster... it's just that I eat only small portions if I eat it during the day. Steak especially (which I love! lol) has really high protein & should not weigh you down if you eat only a small amount. But, much like you I eat like a bird, basically, & the Provigil does seem to kill what little appetite I would normally have. I mostly avoid carbs during the day, particularly complex carbs, as those definitely seem to be a serious sedative for me. lol
When it comes to exercise... I hear ya, girl! I have very little energy 99% of the time. My boyfriend's grandpa does reflexology & we recently talked to him regarding some really bad joint pain I sometimes get in my left leg. But, after talking with him & thinking about it I am wondering if some regular reflexology (that we could easily do ourselves here at home & would take 15 - 30 mins) might help, along with something low impact like yoga. I totally feel how much muscle tone I DON'T have though & it depresses me... I was in dance & big time in martial arts for years when I was younger & can't believe how different I feel in such a relatively short amount of years.

Bonnie - posted on 10/17/2009

14

17

2

I've taken Provigil for several years and didn't think I had side effects. Your post makes me wonder if I should try Nuvigil. Since my diagnosis and medication, I experience more stress, more anger with stupid colleagues...I just thought that it was because I was awake. When things get too stressful, I cut back a pill for a couple of days. :) I figured that life was stressful and people were stupid, I had just been asleep for nearly 30 years, so I hadn't noticed. By the way, I'm a big, big girl. Of course I'd rather nap than work out, but the doctor also suggested that my hunger dial might be messed up like my sleep dial. That, and I like to eat. Medication hasn't helped the weight because I'm awake...angry...stressed. :)

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms