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Kerri - posted on 03/22/2009 ( 1 mom has responded )

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Hi my name is Kerri I have 1 boy then 6 girls and 1angel baby Dylan.

We lost our baby boy Dylan John Ronald on the 11th July 2008. He had trisomy 13 and no chance of life. We are still trying to come to terms with what happened.It all started at the results of the 20 week ultrasound. Got told there was trouble with his heart and the cord. Went for another ultrasound in Adelaide we were told that 2 veins going to his heart were the wrong way around, his kidneys were too small, his eyes were too small, his chin was receeded, his fingers & toes only opened half way & something at the back of his brain was too small. We went back to Adelaide on Monday for an amneo. Got the results on the Thursday that he had Trisomy 13 and that if he survived he would only live 2 months at the most and that if we decided to have him that if he died inside and I didn’t know that I could die too. So we made the decision to do a genetic termination. Dylan was born at 9.40pm Friday 11th July Asleep. He looked so peaceful and so perfect to everyone. He was 22+1 weeks thinking back I thing he was already asleep before I had him. We talked to many doctors they all said that with his heart he would not have survived being born but it still hard trying to move forward.

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Libby - posted on 03/22/2009

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I am so sorry about your loss.  It doesn't make it any easier that you have 7 other children, but let them help you get through this.  I lost my daughter in December and I am so thankful to have two boys to take care of.  Without them I think I would just sleep all day and go into some deep depression or something.  But luckily I haven't and I won't.  They help me do my daily life and keep moving forward.  I don't know how the moms do it that lose their first child.  I just think it would be so much harder.  Rely on your family to help get you through this.  Oh, and rely on this forum too.  There are a lot of great ladies here!!!

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