Hello =)

Nicole - posted on 04/17/2010 ( no moms have responded yet )




I just wanted to introduce myself. it seems there aren't alot of places to meet with others that have children with albinism so you have other people you can relate to.

I am 22 years old and gave birth to Kairi who was diagnosed with albinism officially on April first with OCA-1A they want to do a blood test to make sure that is what she does have. it was noticed her second day of her life when the pediatrician looked at her eyes during her check up . before that every one thought she was just extremely blond white hair child like my sister was.( now that we know more about albinism we are wondering if she would be OCA-1B) her hair skin and eyes are effected . her eyes are the light blue with the pink tint over them where they are almost transparent. despite her eye sight which we are learning that vision problems come with Albinism she is still a bouncy baby=)

when we saw the genetics doctors they gave us the NOAH website which was very helpful too. www.albinism.org not only to learn more about her but also to get advice from those that have albinism.

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