Ocular Albinism

Sarah - posted on 12/15/2009 ( 2 moms have responded )

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I went on 12/5 to a genetic/derm appointment for my son who has ocular albinism and we discovered he is for sure part albino. He has the gene which they said is like #15 called OCA Type 2a/2b. We don't know if he is type a or b because we didn't have his blood drawn to figure that out. The doctor said that either way the treatment of our son is the same so it doesn't really matter. No sunburn was the main thing, SPF 50 sunscreen with zinc if he does go out, sunglasses if he wants to wear them and thats about it. If you have any questions let me know!

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AMANDA - posted on 02/25/2010

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Hi my daughter gets her sunscreen on prescription, it is uvistat spf 30 and works a treat, so glad u get it on prescription as it can b sooo expensive as i was advised to put it on every day regardless of the weather!

Christina - posted on 01/27/2010

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My daughter has albinism, she is 2 the sunscreen doesnt work for her we can drive to the store and back and she'll be pink from what little sun comes thru the tint on the windows does your son have a prescription sunscreen or just over the counter?

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