Communities

Mothers of Children with Myopathy

Mothers of Children with Myopathy

This is an area where parents can communicate about their child or children with myopathy. This can be any type of myopathy.

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Our story

Essentially my 20 month identical twin daughters, Ashlee & Aimee have congenital myopathy, term for any muscle disorder present at birth. Congenital myopathies cause loss of...

Lorena
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