Mothers of preemies

So I wanted to start this community because I couldn't find a support group or anything to help me deal with what comes with having a premature child. My daughter was two in half months early and was in the hospital for. Four in a half months I finally have her home and it's completely different then when we were in the hospital. I'm stressed... She has had open heart surgery..NECC..she has a g tube and will be on fourmula longer then a full term child. There are endless doc appointment and she is on oxegyn and is fed 22 hours a day through a feedin pump I need mothers to talk to for advice since I know no one that is going through this stuff...sooo hope I can get some people together. Thank you