anyone with a child with a cleft

Stacey - posted on 09/14/2010 ( 12 moms have responded )

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I have a 3 month old son that has and cleft lip and palate and was just wondering if there were and other moms out there going thru the same thing.

12 Comments

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Bambi Rashell - posted on 12/04/2013

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Im 36 weeks my baby has bilateral cleft im scheduled fo a c section after delivery what can i expect

Pattie - posted on 09/28/2010

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I was born this way, had many surgeries. It is amazing what is available. Check out Dr. Brad Keller, in Ft. Walton Beach. My son was born with clef lip, had surgery at a young age, barely has a scar. Is he having feeding problems?

Carmen Joan - posted on 09/26/2010

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Yes we did.... Phil is now 5 years old and has undergone four repair surgeries for his cleft lip and palate.. your baby's cleft lip and palate is almost the same as Phil's :0) Happy to help you, just email me... God Bless! :0)

Sherri - posted on 09/23/2010

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My first born son had a total cleft palate but no cleft lip. He had plastic surgery at Children's Hosp it Washington DC when he was 17 months old. I can't help you with the lip, but I understand about the palate.

Jamie - posted on 09/22/2010

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Hi Stacey, I have 12 and 1/2 year old who was born with a very wide, in fact one of the widest his doctors have ever seen, unilateral cleft lip and palate. We have had multiple surgeries. I would be happy to answer any questions I can and just chat if you want.

Gina - posted on 09/21/2010

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My 8 1/2 year old daughter was born with a bilateral cleft lip and palate. She also has a genetic syndrome called Bohring-Opitz syndrome. This is a tough time for you, but you will get through it and love your son all the more for it! I'm happy to answer any questions! Gina

Catherine - posted on 09/21/2010

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My son, now 13 had a bi-lateral cleft lip and full cleft palate. He has had 6 operations now on it, with a fantastic result. He still has some food leakage from his nose and speech problems. The bone graft, we did that recently, went really well, and soon we'll be doing the braces thing :)
Happyt to chat if you want :)

Amanda - posted on 09/21/2010

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my little monster pants has a cleft lip and palate from womb. we found out when i was 6 months pregnant. it was hard, but we have a great team of doctors. both the lip and palate are repaired, but there are still things that come up, like how his teeth are growing in, speech etc .. but i wouldnt trae anythng weve been through. and im always happy to chat about it ifyou wanted

Vicki - posted on 09/21/2010

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My granddaughter was born with downs syndrome, a defective heart & cleft lip & palate!!! Her heart has been repaired. She had her lip repaired first, then her palate later and they do such a wonderful job these days. She is now 5, going to school and doing well. I'll keep you in my thoughts & prayers and I'll be happy to chat any time.

Altara - posted on 09/17/2010

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my daughter just turned a year old she had a bilateral cleft lip and palate. She had her lip repaired in April and is going this wednesday (22nd) to get her palate repaired.

[deleted account]

Hi Stacey!! My son is 22 months and had a bilateral cleft lip and palate! It has since been repaired...would be glad to chat anytime :)

Sarah - posted on 09/15/2010

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I have a son who was born with a midline facial cleft. He is now 8 1/2 years old. Feel free to send me a message with any questions you might have!

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