hard times! HELP, HELP, HELP!!! anyone!

Dani - posted on 09/17/2012 ( 1 mom has responded )




My baby is 5 months old. He has down syndrome. Today he is getting a permanent pacemaker in. He has had 2 open heart surgeries. He has a G tube because he is not able to eat enough by mouth. I am 21 years old. Living at my in laws.with not much income. Now my husband wants to be in the Navy. I am so confused and scared. Me and my husband have a great relationship and we are so in love. Our baby has brought us closer together but I'm scared I am going to loose my baby. Or I'm going to loose my husband if he goes in as a navy seal (that's what he wants to do) there are so many things going on I don't know what to think.


Michelle - posted on 09/18/2012




You have a lot of your plate for such a young woman! I know this is hard to hear but try and not worry. There are SO many things you have to worry about you may want to try and focus your attention where you can. Your husband, though I am sure he is young too, has made a decision and you need to try and support him on it. He is trying to "man-up" so he can take care of his family. You love and support your husband and then focus all your love and attention on your son. There are many people with children who have Down's Syndrome. Look for groups in your local area to get additional support. Sign up for Early Intervention and any other services you can get for your son. Also make sure you apply for SSI.

Your path through life might be hard but the journey will be amazing!

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