Introducing myself

Jennifer - posted on 10/30/2008 ( 6 moms have responded )

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Hello I have a 17 month old son who has Williams Syndrome. He was diagnosed when he was 10 months old. He has physical therapy, Occupational therapy, speech therapy, and we have to watch his clacium intake. It hasn't always been easy, but he has brought me so much joy. He is always happy and loves people. I had never heard of Williams Syndrome until I found out my son had it. I think though out of all the syndromes out there I'm glad he has one where he is happy and loving all the time. I would love to get to know other people who have a child with Williams Syndrome.

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Laura - posted on 10/31/2013

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How do you potty train!?!?!??!!? Im lost in this area ....my little girl is 3 and has WS

Cindy - posted on 11/14/2008

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Hi Jennifer, I too have a son with WS. He was diagnosis at about 10 months old. He will be 5 next week. When he was younger he also had PT, OT, speech along with an Early Intervention playgroup twice a week. Early on it was a almost a full time job to keep up with all of the therapies that were needed...but it was all worth it. Cole is now in an intergrated preschool and is progressing very well.

Rachel - posted on 11/14/2008

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Hi Jennifer! My son is 14 yrs old and also has Williams Syndrome. Be patient, everything comes with time. Well almost everything, jacob still cant tie his shoes.

Any ? just ask. I'll try to help. I dont know anyone around here (GA) with a Williams

child.

User - posted on 11/14/2008

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Hi Jennifer!
My son Joe was diagnosed with Williams at 5 months, he is now 10 months. The beginning was so difficult, but I am now thoroughly enjoying his social, friendly personality. What is your son's calcium level? I've sort of been dealing with this because his is right at the upper end of normal (10.8) and I can't get clear answers if I'm supposed to keep him off dairy or not! Nice to "meet" you, lets talk more!

Jennifer - posted on 10/31/2008

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Our pediatrician didn't know much about Williams Syndrome, but he heard a heart murmur so he sent us to a cardiologist who found Levi's heart condition and I guess it is linked to Williams Syndrome so that is how we found out. It's got to be hard knowing that there is something wrong and not knowing exactly what it is. I will keep you in my prayers.

Kyndra - posted on 10/30/2008

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Hi Jennifer! My son has not been diagnosed with a specific disorder but at three years of age, he has some significant developmental delays. He does not walk unassisted, doesn't speak (jabbers often) and doesn't seem to have the same cognitive abilities as children his age. He also has had physical, occupational, speech and developmental therapy. He is currently enrolled in the Early Intervention Program for children with Dev. Delays through our school system. That has been a wonderful thing and he enjoys it very much so you definitely have that to look forward to in the future! In Indiana, that program starts at age 3 - it's likely the same in your state. The most frustrating thing for us is not knowing what he has or what an outcome might be. We are keeping our fingers crossed that information is somewhere in our future! In the meantime, he is happy and content with himself and I don't suppose you can ask for anything more. Best of luck to your family and I'll post more info as things develop with Eliott! I will also be asking my Pediatrician about Williams Syndrome.

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