Jacob BCL&P

Britany - posted on 02/03/2010 ( 5 moms have responded )

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This is Jacob at 2 weeks old just after leaving the NICU to the floor

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[deleted account]

Wow, you sure have had a lot going on...hope you get some answers!! I can understand though, my older son (3 1/2) is in the process of being evaluated for autism and ADHD. Some days it's just excausting! Max is having his 4th surgery in May because his palate is opening back up. The other 3 were lip, palate and ear tubes. I will look for you on cleft.org! have a good weekend :)

Britany - posted on 02/12/2010

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Jacob just turned 4. he has only has 3 surgeries for his cleft so far, but next week we find out what they will do next. We just found out a few days ago that he needs genetic testing bc he may have VCF. Hearing that validated so many things for me. He is a very hyper boy, the height of a 4 yr old an the weight of a two yr old, he had a heart murmer, bacterial meningitis, pnemonia, MRSA, Hes allergic to alot of stuff, he ate a kitkat and got hospitalized...it's been tough, but now we may have more answers. I hope maxwell's surgery goes ok! Please if u would let me know how it goes. Btw cleft.org is mostly ppl gettin and giving advice about cleft and giving support...I'm, Jacobsmommy if u ever need meon there.

[deleted account]

Hi! I've never been on cleft.org, but I will defanetly check it out!! We have tons of pics too! People told us we would miss his smile and boy were they right! How old is Jacob now?? My son Maxwell is 15 months and will be having his 4th surgery in May.

Britany - posted on 02/09/2010

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thank you! I miss Jacobs smile too, but at least i have pictures to remind me. I think it's great meeting other moms with cleft kids! Thanks for writing me, do you ever get on cleft.org discussion forums?

[deleted account]

Hi! Love this picture! My son had a bilateral cleft lip and palate also. He is now 14 months and has had 3 surgeries. I miss his silly little smile!! Jacob is beautiful!!!

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