pervasive development delay aka PDD?

Carole - posted on 01/20/2010 ( 9 moms have responded )

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Hi everyone I was wondering if anyone has info about PDD? Are there any web sites or question and answer forums that may be helpful? MY 7 year old son has recently been diagnosed ( again long story ) with PDD which i really don't know much about. He also has CP, Muscle myopathy and ADHD. There are a lot of things coming at me and I just need to start educating myself so I can help him better! thanks carole

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Jennifer - posted on 10/15/2014

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Hi my name is jennifer. My son was diagnosed with pdd- nos at the age of 2 yrs old. He is 13 yrs old. He did not talk until he was 4. He had sensitivities with loud noises, changes in routine would trigger a meltdown . He was very hyperactive. grunted, pointed, and hand lead me to get his needs met. They told me that he was functioning on a low IQ. Today, he speak using full sentences, independantly dresses himself, eats, heats his own food up, goes on walks alone, operates his video games( which he is quiet good at). He has interests in astronomy, science history etc. He still reads at a 3 rd grade level but we're working hard to catch up. He argues a lot like any teenager. Bites his hand, plugs his ears when overstimulated. Has me repeat certain phrases for comfort .He hates school and it is a fight everyday to get him there. He's decided to stop talking to the teachers and had no interest in socializing with other kids. We are waiting to recieve ABA therapy and currently he recieves occupational therapy. I have an advocate that supports us in his IEP meetings and have been proactive in making sure the school does not push him through the system like a piece of meat in a factory . Children with autism have their own unique strengths and talents. My life as a single mother is hard everyday but I refuse to give up on my son.

Marni - posted on 01/25/2010

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hello my name is marni. My son Avery has pdd-nos. He is 6 yrs old. He was diagnosed when he was 2 yrs old. pdd is a social disorder where they seem to have trouble socializing with other children dont make much eye contact seem to be disconnected from thier environment (in their own little world) My son has just started talking. He has been getting services since he was 2 yrs old. He gets speech , OT, PT, sensory intergration, and music therapy wish he loves and it has done wonders for his speech. If you dont mind me asking what kind of symptoms does your son have? Have you read Jenny mcCarthy's Book louder than words? Good book! I could go on all day about what I have been through. If you have any Questions for me or if you just want to talk about your situation feel free to write me back. Good luck in the future.

Emilie - posted on 01/22/2010

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My son is 4 1/2 and has PDD-NOS (pervasive development disorder - not otherwise specified). Generally, anyone with a PDD can get some helpful information from autism sites. The specific diagnosis within PDD is generally what might change. For us, my son will likely keep the PDD-NOS label, since his symptoms just don't fit any of the other categories.
If you are interested, there is an Autism/Asperger's/PDD Awareness group here where you will find other moms of children with PDD.

Sandra - posted on 01/22/2010

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Hi, my son is 4 and has PDD-NOS. It is classified as an autism spectrum disorder. Once you have a diagnosis then you can get him into a school that could help him. Make sure you get an Occupational therapy, physical therapy, speech therapy evaluations. Call your school district to get more info. ABA has helped my son a lot. It is doing discrete trials with a one on one teacher. They seem to learn best in this manner. Also check out AutismSpeaks.com. Good Luck and any questions feel free to ask. I wish I had someone to talk to after I got his diagnosis..

Iridescent - posted on 01/21/2010

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Yes, the diagnosis PDD generally changes - it either fades away or becomes more specific to a disorder (like Asperger's). All it really means is there is a delay not caused directly by anything known, and it's lasted for a while at that point.

Cherish - posted on 01/21/2010

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Hi,
All 3 of my kids are on the "autism spectrum".My oldest (17) has PDD.
My youngest(7) has classic autism and when he was younger he had a provisional diagnoses meaning that yes sometimes w/ therapy in SOME kids it might change.
What state are you in?

http://health.groups.yahoo.com/group/Nor...

Carole - posted on 01/21/2010

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Thank you. what do you mean by tentative diagnosis? Do you mean the diagnosis could change?

Iridescent - posted on 01/21/2010

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PDD is under the Autism Spectrum Disorder umbrella; it's generally a tentative diagnosis until they can see more what's going on. It does tend to go with ADHD though. Make sure OT especially keeps working with him, keep the equipment around and use it (with the other diagnosis list I'm certain you already have this in place). It's more how his brain processes than anything.

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