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Tanya - posted on 01/07/2009 ( 2 moms have responded )




Hi 2 all, my name is Tanya & i have a son (Timothy) who was born 12 weeks premmie & had a major bleed on the brain 3 weeks after he was born & was diagnosed with Spastic Quadraplegia at 6 weeks old. He is now nearly 14 & after numerous operations on his feet, legs & hips Tim is doing better than we ever expected. When Tim was 6 months old i was given a poem called A MIRROR WILL SUFFICE...when i moved last year i lost the poem & was wondering if anyone out there has a copy of it truly means the world to parents of a special needs child u would understand those days that it just gets on top of u...this poem was my saving grace...i would read it over & over & it seemed to give me the strength to keep on email address is am hoping that someone out there can help with this....keep smiling & its good to know that we are not alone.....luv 2 u all xoxoxo


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Celeste - posted on 01/09/2009




Most women become mothers by accident, some by choice, a few by social pressures and a couple by habit. This year nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen?

Somehow I visualize God hovering over earth selecting his instruments for propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.

"Armstrong, Beth; son. Patron saint...give her Gerard. He's used to profanity."

"Forrest, Marjorie; daughter. Patron saint, Cecelia."

"Rutledge, Carrie; twins. Patron saint, Matthew."

Finally He passes a name to an angel and smiles, "Give her a handicapped child."

The angel is curious. "Why this one God? She's so happy."

"Exactly," smiles God, "Could I give a handicapped child to a mother who does not know laughter? That would be cruel."

"But has she patience?" asks the angel.

"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."

"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make him live in her world and that's not going to be easy."

"But, Lord, I don't think she even believes in you." God smiles, "No matter, I can fix that. This one is perfect -she has just enough selfishness." The angel gasps - "selfishness? is that a virtue?"

God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a "spoken word". She will consider a "step" ordinary. When her child says "Momma" for the first time, she will be present at a miracle, and will know it!"

"I will permit her to see clearly the things I see...ignorance, cruelty, prejudice....and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side".

"And what about her Patron saint?" asks the angel, his pen poised in mid-air.

God smiles, "A mirror will suffice."

Celeste - posted on 01/09/2009




Hi Tanya! I, too, am the mother of a preemie-(14 weeks early). She was diagnosed with PVL at 2 weeks, which lead to CP-spastic quadraplegia. She is 29 months old now and getting ready to have her first surgury...adductor/hamstring lengthening at Dupont in Wilmington, DE. I am excited for this surgury because the doctor says that afterward she should be able to sit up on her own within 6 months...we've been working on that for 2 years now! Sitting now is just not possible with her tightness. I am also very nervous about this surgury. Well, I could go on and on, but I'll stop for now! Anyway, I'm excited to find someone with simliar issues. I hope that you find the poem and if/when you do, please forward it to me. I would love to have some more inspiration! God bless you!

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