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School for SN child?

Crystal - posted on 01/15/2009 ( 1 mom has responded )




I am wondering what would be the best option for school for my special needs daughter who just turned 5. She is totally blind, but our closest school for the blind is almost 2 hours away. I really don't feel she has been progressing in the ESD ECSE preschool here and don't feel like she will at the public school next year either.

I also feel I am strung out myself homeschooling my 2 boys who are 8 and 6 with and also having a 9 month old crawling around getting into everything. I am kind of at a loss at what to do for her.

My 5 year old had a JPA brain tumor that was resected at 8 months which caused her total blindness, endocrine issues, and seizure disorder. She has multiple disabilities, is medically complicated, developmentally delayed, and is non ambulatory at the moment. She has a g-tube, is severely allergic to beta-lactam antibiotics (had a severe hemolytic reaction that almost killed her and put a hole in her bowels causing her to have an ileostomy which has been reversed since), and is on a whole bunch of medication. She also has hypotonia and low bone density / muscle strength. She might possibly have CP, although not diagnosed with it.


Marie - posted on 01/23/2009




Well, I know you said you are unsure about public school, but short of driving her to the school for the blind or paying for some private option, I think that is what you are looking at if you do not want to home school her.  She should qualify for a one on one aid.  I think that would be your best bet.  Other than that, I would say send your boys to public school and home school your daughter.  There really aren't a ton of options, unfortunately, especially for kids with special needs.

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