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Spina bifida

Dawn - posted on 07/13/2010 ( 1 mom has responded )

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Hi Everyone!

I was born with Spina bifida. My husband Dan and I now have a 5 year old boy with Spina bifida, and would like to know if there are any support groups out there who we can converse with?

My story is a long one, but if your situation is like mine, I would love to talk to you!

Sincerely,
Dawn

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Yheyhe - posted on 08/08/2010

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Hi dawn,
My Name is yheyhe, I have a child who is now 4 years & 8 months old. He was born with Spina bifida, his was a lumbar meningocele and was operated when he was 5 days old. His walking ability was affected. He has brace now but he cannot walk and stand alone. We will greatly appreciate if you can share your story with us... many thanks in advance.

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