Started new community for moms with children with visual problems and that are impaired

MOST HELPFUL POSTS

Hookedonwdw - posted on 07/23/2012

6

0

2

Hi Sharlene,

My son is dyslexic which, I know is not quite the same, but I wanted to pass along a little info about a service that has help my son greatly. Learning Ally, (formerly the Readings for the Blind and Dyslexic) can be found at www.learningally.org.

They provide 100's of 1000's of books on audio, and include everything from fiction to text books. I don't want to sound like an advertisement but they really have helped my 11yr old gain some independence, especially when it comes to school work and choosing books of his choice to listen to.
I wish you all the best of luck.

Sincerely,
Kristin Kane
Learning Ally
Parent Network

Grace - posted on 07/05/2012

5

0

0

Hopefully you're all connected to FamilyConnect community so you can meet others in your state? Or the National Organization of Parents of Blind Children (part of the National Federation of the Blind.) My daughter's story is here [http://www.babymilagro.org/nicuroad.phtm...] and she is now 10 years old, loves to read and write and do math! We're in California.

User - posted on 06/22/2012

4

0

1

my 3 1/2 year old daughter has a cortical vision impairment... meaning her eyes are fine, but the connection between her eyes are brain is affected. vision is definitely one of our biggest struggles. we've been trying to get her to walk, but it's really hard when she can't see where she is walking. she does see some things - looks at light, contrasting colors... will track a little.

Gidget - posted on 04/28/2012

2

29

0

My 13 yr old son had vision issues.. He can see shadows and colors.....He can walk.. thank goodness.. he been walking since he was 4.. he also has cerebral palsy

20 Comments

View replies by

Carrie - posted on 03/23/2015

1

0

0

My daughter was also treated for congenital bilateral cateracs at 10 wks...not long after the surgery the Dr informed us she had glaucoma, she is now 3. It's been a emotional roller coaster. ....Dr says she may not be canidate for iol s due to eyes being very small. Inocular pressure have been good recently. Also found out she has patches of pigmentation in retinal. Need support

Shelly - posted on 08/12/2014

3

0

1

My daughter has cp, but she wears glasses. I am concerned she has an impairment for the fact that she feels for everything, things are in front of her face and she trips over it looking at the object. She doesn't look down, she's always looking up. How can I really find out if she's blind, the eye doctors treat her eyes just like our eyes and give her glasses but I think my daughter can't see well. How or who would I see for that concern? Anything will help, I feel if she can see she would do so much more like stepping down a curb or step with out getting on her knees. Help

Saba - posted on 11/05/2013

1

0

0

hi I have a 16 yr old daughter with total optic atrophy who is also s nonverbal and has cerebral palsy with moderate mental retardation. how do you go about training such a child communication skills .I can't teach her many signs as she has motor problems and I cant use picture board as she cant seem to see pictures very well .I tried gotalk a talking picture board but that doesn't seem to be helping much so I'm stuck and frustrated as I can see my daughter is also getting frustrated as she wants to communicate but doesn't no how. anyone facing the same problem pls help.......

Sarah - posted on 01/09/2013

14

0

0

My daughter was 4 months old when she was diagnosed with bilateral cataracts. The doctors were so concerned because of her age they scheduled the surgery that week. They did one eye at a time and both were successful. She now wears hard contact lenses. It was a difficult time in our lives not knowing what her vision would be and why this happened. She is about to celebrate her 2nd birthday and is undergoing numerous therapies, vision included, and is doing so much better then we could have ever expected! She has an upcoming appointment to schedule and lens implant surgery(s) and I feel like all of the emotions from when this all started are resurfacing. I hope your child did well with the surgery and is taking to the contacts well. I'd love to hear more about your story :)

Nell - posted on 10/01/2012

7

0

0

hi i have a three year old daughter who had cataract surgery at 1 and half years old and wears a contact in that eye the cataract was removed from and has to undergo another surgery on this wednes to have a iol lenses placed in that same eye if there is anyone who has experienced this type surgery with their child give me insight on how it went

Sharlene - posted on 07/23/2012

3,896

241

825

@Kristin. thank you so much for that info . I will try that link. take care

Brandi - posted on 02/22/2012

8

7

2

Syntonics is also known as Optometric Phototherapy. There is a lot of info. available on it via search engines on the internet. It seems to have a pretty high success rate. Most often used with children who have strabismus, amblyopia, or learning disorders.

Neuronet is something that was started by an occupational therapist to help a child intergrate all of the senses of the body which is supposed to help the brain processing info. better and faster. There is some controversy as to whether or not this works.

Just wanted some input from others as to their experience with either of these.

Sharlene - posted on 02/22/2012

3,896

241

825

@ Brandi , Can you tell me more about that treatment or can i get info of google . take care

Brandi - posted on 02/21/2012

8

7

2

I was wondering if anyone has tried syntonic therapy or used Neuronet? We are considering these options that have been recommended by our optometrist for our son.

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms