20 weeks old now

Rachael - posted on 04/07/2010 ( 3 moms have responded )

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robert now 20 weeks old he was born with an omphaocele and a heart condition spent 46 days n the ICN a UCSF in San Franciscoand underwent 3 major surgeries, he was able to come home when he got an infection(he was home for 1 month). he returnd to the ICN and is still there today and jus went threw his 5th surgery (2nd surgery for this admission)having more troubles getting on the vent each time. (hoping tomorrow he get to be xtabated).....Doc are hopeful for him to be able to come home by the end of this month before returning for heart surgery

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Aubrey - posted on 09/08/2010

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i found them thru yahoo... not sure how to get on it now...its been 6 years now...lol

Aubrey - posted on 04/08/2010

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I wish you and Little Robert all the best. My son has walked that road over 4 years ago. He was born with a host of issues the omphacele was the least of it all... It is tough to see you little one have to endure so much...but our kiddos are very strong. have you thought about joining the MOO's Group? We are a group spanning the globe. We have O parents, grandparents, O survivors and everything in between. It has help a great deal with dealing with and the "what should i expects"



take care,

Aubrey Schmidt momma to Daniel (cloacal exstropy survivior)

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