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Mums of Bladder Exstrophy Babies

The exstrophy/epispadias complex is a congenital birth defect that affects the bladder, the urethra, the genitals and the pelvis. Bladder exstrophy is the most common form of the complex, epispadias is at the minor end of the spectrum with cloacal exstrophy being the most severe form.



my son Zackary was born with classic BE, a solitary left kidney and ASD. I love talking to other moms who parent these special children!


Parent directory

I'm putting together a parent directory for hospitals, clinics and doctors offices to hand out to patients/families dealing with hypospadias, epispadias and bladder exstrophy....