Trying to raise awareness of spd/pgp.!

Angie - posted on 03/29/2011 ( 4 moms have responded )

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I have had spd for 10 years now..but I only had support the last 2 years.I thought i was on my own.Unfortunetly,I am now permanently disabled because they didnt treat the pgp after 5 years.Whats happened to me has happened now..but I would like to help raise awareness about spd to midwives,physios,health secretaries,chiropractors to allow them to understand that if this is caught early enough it can be managed and treated successfully in alot of cases.
Please help PINS -Pelvic Instability Network Scotland help you.We have a meeting with Alex Salmond soon and would like your ideas on what we can do to help.
Thanks.

4 Comments

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Sarah - posted on 05/08/2011

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you dont have to suffer alone, just email help@supportpelvicdysfunction.co.uk and we are here to help any woman with SPD including family members who are curious about SPD or want to understand it, our england charity has a self help FAQ and one on one support, can provide medical documentations or letters for your dr to take you seriously and know the next steps needed to improve with the SPD or live a pain manageable life. Please do not hesitate to contact us at help@supportpelvicdysfunction.co.uk



We also have an official group on circle of moms ran by our charity founder, its new so needs members but has the intentions of becoming a meet and make friends forum in which you can share stories and gain advice from other sufferers too, we have competitions to lighten your load and although we cannot be responsible for any advice given through the forums, we do give official advice ourselves via the email address provided. We are here to HELP.

Pauline - posted on 05/08/2011

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I know how you feel been there done that worn the t-shirt, no help even though ive done my reserch the specialsts dont care, i'm 29wks pregnant at the moment and housebound in a wheel chair hope that your meeting has some favourable outlook to our plight

Sarah - posted on 05/08/2011

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www.supportpelvicdysfunction.co.uk and help@supportpelvicdysfunction.co.uk is a new england charity, and congratulations angie on your new article for aberdeenshire and PINS!

Louise - posted on 03/29/2011

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I had a taste of this with my last pregnancy and was in absolute agony so I can appreciate what you go through every day. I have to say the care I got from the midwives was appauling although it was in my notes that I had limited movement with my pelvis being unstable they took no notice and the delivery room was just sheer torture. i screamed out in pain for them not to examine me constantly and they took no notice.

My consultant was the only one who took pity on me and induced me early so that I could walk again. I think it is the sheer miss management of my labour that forced me into having an emergency c section. By that time I would of agreed to anything to get the pain in my pelvis to stop.

I think midwives need to be retrained to deal with women like me who have never been in this sort of pain before. I really did not know what to do and from 26 weeks pregnancy I was in so much pain I could not walk so I stayed house bound every day. I would of liked some help with maybe a disabled car badge so that I could park nearer to shops or something. Even some physio might of helped in a heated pool or something to take the weight off my pelvis. I was given an ill fitting pelvis belt but it did very little and did not really do what they said it was.

All I can say is I am glad this happend on my last pregnancy because she would of been an only child if it had happend on my first.

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