Myoclonic Epilepsy

Kasen Jorgensen, now 2 1/2 was diagnosed at age 1 with Myoclonic Epilepsy.. I want this community to be able to talk about their struggles, questions, comments and/or concerns!


Ketogenic Diet

So we started the Ketogenic Diet and it has been a week. We went from 10 seizures a day to sometimes 1 and sometimes none. PRETTY GOOD NEWS. Anyone have any advice on the diet...


Hopeless, helpless!

I feel so hopeless with my son's seizures.. That they'll never find the cause! And helpless because I am his mother, and can not for the life of me take these horrible things...


Benign Myoclonic Epilepsy in Infancy

Hi! My 9 month old was just diagnosed with benign myoclonic epilepsy in infancy and the doctor wants to start him on Keppra. Have any of your kids been on this? How did they...

Started by Heather on 09/20/2012 in Myoclonic Epilepsy

Last update on 01/31/2013 by Lara



Has it gone away for anyone and if so how long did it last?


Myclonic astatic

Hi Amanda my son Evan diagnosed with myclonic astatic epilepsy at 2yyrs 8 mths, that was two years ago. We have had a rough and scary two years, but thankfully the last 4 months...

Started by Audrey on 11/10/2010 in Myoclonic Epilepsy

Last update on 11/10/2010 by Audrey


Normal EEG testing..

Hello mothers, my 2 yr old was diagnosed a year ago with Myoclonic Epilepsy.. I have reason to believe this may not be a proper diagnosis and fear he is taking Keppra for...

Started by Amanda on 01/19/2010 in Myoclonic Epilepsy

Last update on 11/07/2010 by Wildkris10d