Parents of children with Glycogen Storage Disease

My little boy suffers from a rare metabolic liver disease called Glycogen Storage Disease. This group was formed from the passion of a mother, to educate people that these diseases are real, serious and for children like my son, there is no cure! So please spead the word! The definition og GSD is: glycogen storage disease: any of several metabolic disorders (as McArdle's disease or Pompe's disease) that are characterized especially by abnormal deposits of glycogen in tissue, are caused by enzyme deficiencies in glycogen metabolism, and are usually inherited as an autosomal recessive trait


Pompe Disease

My daughter Amber just passed away in Aug. from this disease. Did you know of the movie that is coming out on Jan, 22nd about this diseas it ought to help get the word out there...