Spina Bifida Experiences

Louise - posted on 08/26/2010 ( 3 moms have responded )

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I have a GORGEOUS, happy 2 1/2 year old who was diagnosed with myelomenigecil at 17 weeks gestation. We don't know a single sole with spina bifida and are looking to talk to families who understand the kind of family life we lead.

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Danielle - posted on 12/05/2010

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I am here as well :) Some great support groups are www.spinabifidaconnections.com (they are all very nice and a forum type setup)



and also if you have a Facebook account check out United by Spina Bifida Group (although new it's a great place to meet and talk to other like us)



My daughter, Kaiya has myelo L2-L3 and is almost 18 months.

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