Cyclic Neutropenia- Just diagnosed

Michelle - posted on 05/20/2014 ( no moms have responded yet )

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My 5 month old was just diagnosed with cyclic neutropenia and I am so worried about her. I am a teacher and I probably bring home a lot of germs every day. I have so many questions and we are having a hard time getting answers. Is this something that she will have forever or can she grow out of it? Will she have to have a bone morrow biopsy along with the other lab work that they continue to do? I just feel so overwhelmed and confused. It feels like it is just bill after bill that keeps showing up and it is getting so hard to keep track of everything.

For all you mom's out there that know and understand this because your child has it what advice can you give us and how can I do what is best for my baby? How has having cyclic neutropenia impacted your families lives and your childs life?

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