Son just diagnosed with PDD , feeling so alone!

Rebecca - posted on 04/17/2013 ( 1 mom has responded )

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I am sure many of you can relate to how devastating it is to get the diagnosis . I am trying so hard to find peace and exceptance , yet a part of me is still so indenial. So okay we meet with a neurologist who says I don't want to put a label on him , yet we need services , I can accept that. Yet I have been consumed by this it's all I ever think about! So it goes like this I have an adorable 22 month old little boy who on the positive is lovable , makes great eye contact , points well , pretty social. Things that don't sit well with me , no gesturing , limitied vocabulary , mostly babbling , very repetive interests. I feel like I just need to except this and move on yet a part of me is just hoping he is to young to really know. My biggest fear is that he will be non-verbal as I am such a social person. Anyone with PDD-nos diagnosis feel this way ? Also any moms out there that can give me some hope that he will talk someday! thanks so much!

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Loni - posted on 01/21/2014

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Hi Rebecca. I just joined this group yesterday, for the same reason that you express in your email; the part about feeling alone. However, I'm so glad to know that I can help bring comfort, too. It sounds like you are the type of mom who would do anything for your child (or you wouldn't be posting on this site!), so your son is so lucky to have you. I have a son, as well. He is now 3 years, 8 months old. He was non-verbal until his third birthday, then he finally started saying one or two words at a time. He still doesn't speak in sentences, but his language increases every day. There are so many different things that you can try out there to help your son, but if I can give you one point of advice, it would be this -- buy the "Signing Time" DVD series. My son watched the DVDs for over a year, and I kept saying, "I don't think he's interested in sign language." Then, on his third birthday, I put in one of the videos and he signed every word and now says all of them. He was taking all of that in over time, and it just came out in his own time. Someone said to me once, "If your son is making progress now, he will continue to progress." It sounds like your son has a great foundation for communication, and it will come.

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