Prader-Willi Syndrome

This is a group of family members, friends, and professionals involved in the life of someone with Prader-Willi Syndrome. This group is to discuss the good and the bad of Prader-Willi and to help bring us together for sharing info and helping one another.


how did you find out?

How old was your child when you found out they had PWS? What tests did they do to diagnose? If your child was older, what drove you to get it checked out? Im asking as...


food compulsion

my daughter i only 2 but i am really worried about the issues of her having the food compulsion. i was wondering if any one else has this issue.. and if so if you would mind...



strange question: My daughter Alyssa is not going to be out diapers any time soon.. and we are already up to size 6.. does anyone have any good ideas what to do next when she...



Alyssa is still not sitting up on her own.. (you can put her in a sitting position and she will stay.. but not pull her self up) we have therapy coming every week. but sometimes...


new bill

has anybody else heard about the new bill they are trying to pass? A resolution supporting the establishment of a National Prader-Willi Syndrome Awareness Month has been...



My daughter Alyssa was diagnosed with PWS when she was a week old. I wanted to start this group for all the moms out there going through what my family is going through.. to...