agglutinin disease

Conni - posted on 06/18/2010 ( 1 mom has responded )

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i am a mother of 5 with my youngest being twins. one of my twins was recently-and finally-diagnosed with Agglutinin Disease- a form of cold urticaria. is there any other moms out there who are going through this,frustrating disease? .

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Robin - posted on 06/26/2010

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My daughter has had Cold Reflex Urticaria for the last five years. She is now 12. She is on three meds daily. It takes a lot of adjusting in our lives, but for the most part it is manageable. Though the source is not the same as yours, the outcome is.

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