Does anyone else have a child with cerebral pausy and if so how do you cope with it?

Susan - posted on 04/09/2010 ( 5 moms have responded )

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I have 5 children and my 4th has cerebral pausy. He is almost 5 yrs old and I've known for 2 yrs about his CP. It is only a mild form that he has but it doesn't stop it hurting everyday wondering what he will or won't be able to do. It also hurts that there is no cure for him. I was just wondering if there is anyone else on here with a child with this disability and how it affects them too.

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Susan - posted on 04/28/2010

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Thank you all for your kind words and sharing your experiences. I couldn't find anything on circle of mom's for CP so thought I would start it off. I am so glad other's have responded with different situations too. Thank you all once again.

Tabetha - posted on 04/28/2010

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Hello, my child does not have CP, but was born with severe heart defects. I just wanted to say how much I respect every mom who finds themselves having to cope with these types of situations. My favorite quote is "You never know how strong you are, until being strong is the only choice you have!" Stay strong all of you ♥

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my son has mild cp as well, hes 2 1/2 he had a stroke when i was pregnant with him. his right side was affected, but he walks, runs, talks, very social happy child.. he is in pt and ot now for a while. he wears a brace on his right leg and right arm.. he tries to use his right hand more and more. he had an mri on his brain a few mos ago.. turned out that his left brain had extensive damage, but his brain worked around this while he was still in utero and still now.. he does very well. most people dont even realize he has any problems unless they see his braces.. but i tell them what happened and theyre like omg.. but seriously like sandra said your son doenst know any better and he will work with his handicaps, as long as hes happy who cares !

Susan - posted on 04/27/2010

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Thank you so much Sandra for your reply. It does help a great deal hearing from other ppl who connect with others with CP, especially with different age groups because i often get curious about how adults may cope or may be restricted with this condition too so it can possibly give me a better outlook on how my son may cope as he grows too. Thanks again!

Sandra - posted on 04/09/2010

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I do not have a child with CP but I have worked with several adults and children with this condition. I think the best advice I can give you is to remember that he is happy child and he doesn't know life any different then what it is for him. Things might be harder for him but that does not mean that he won't be just as happy and live just as wonderful a life as your other children.

The other thing is that you should never give up hope for him. I worked with a Women who was told that she was not going to live past the age of 18. Her parents fought for her rights and helped her get the best treatment possible. She was 32 when I worked with her and was living in her own home with people to help her out and she went to a job work program during the day. She communicated with a word board and had about 400 words on her board.



I hope this helps.

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