has anybody been diagnosed with interstitial cystitis?

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Katherine - posted on 03/29/2012

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I was diagnosed with it too. Kind of forgot about it lol until you mentioned it. They put me on Elmiron for a little bit. I still have pain. I really haven't followed up oops.

Sara - posted on 03/29/2012

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thanks! my doctor was very in depth about everything. she had told me my symptoms sometimes souded like it but then at the same time it didn't because I didn't have every symptom.. so after a few months of trying a specific diet and that not helping at all she suggested we do a hydrodistention and cystoscopy where they go in and fill my bladder as much as it can handle then take pictures to verify if it was in fact IC.. well the results were positive it definitely is IC and she also found what looks like a hunner's ulcer forming. she said there was a positive that it's definitely IC my bladder is very scarred from it but the negative is that my bladder can hold a whooole lot more than someone with IC lol so it's weird and hard to deal with. so since it was diagnosed and it didn't help I was put on 3 different medications to help with the bladder pain and discomfort, but the one medicine takes up to 6 months to start working so it's a pain. I'm only 22 years old and I'm told that it's odd for someone my age to have this.

Erica - posted on 03/27/2012

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I had been. I went and got a second opinion. Make sure they do an ultrasound. When I went to a new doctor for second opinion. 1st doc never did any tests just listened to my issues and diagnosed. Second doctor actually did an ultrasound and found out I was misdiagnosed! Good luck!

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