low musle tone


Erica - posted on 03/06/2012





Not sure of your question about hypotonia but both of my children have it. My daughter is almost 3 and my son is 8 months. Early intervention has been a world of help and you should find out if your County offers it. In Auglaize County, OH if they child has a delay of 30% or more OR is diagnosed by a doctor they can get into the program for FREE. This is a scary and hard thing to deal with if you feel lost and blind. My daughter wasn't diagnosed until she was almost 1 but my son was diagnosed at 4 months.

Caroline can jump and climb and play just like anyother child, I don't feel like her coordantion is that off for a child her age. My Doctor and therapist both suggested putting her in Ballet when she's old enough. Now she couldn't climb up on the couch till she was amost 2 and climbing the ladder to the slide, walking, crawling, doing normal kid stuff all came later but with patience on my part and not letting her know something was wrong with her she is one of the best success stories our EI services have seen in a long time! Let me know if you have questions as a mother who has experianced it. It's a lot different then googling it and reading the results, it's not as scary as it sounds.


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Nicola - posted on 12/08/2014




Hi Tammy,

I know this is an old post, but need some advice and feel very worried and alone with what is going on with our daughter Presley. At her 2 month check-up, the pediatrician noted that she had more than normal head lag and referred us to a neurologist who saw her at 2 1/2 months. He said there didn't seem to be anything neurologically wrong with her but she had slight torticollis and maybe a bit of a weak trunk. He told us he didn't feel she needed therapy or further tests, but wants to see us again when she is 6 months old (said he assumes everything will be fine.) I decided to do physical therapy anyway because it couldn't hurt. The therapist feels Presley has very mild low tone in her neck and trunk but she is making good progress and is even beginning to roll over. Everyone feels cognitively she's doing great and fine motor is normal. Our physical therapist doesn't this she will qualify, but I'm having her evaluated anyway in a few days.

All the Dr.'s have been very reassuring, but I'm a natural worrier and can't stand not know WHY she has this problem! And I've been researching like crazy, and everything sounds so scary. My family thinks I'm crazy, but I can't stop worrying for her future. Will she grow out of this like the pediatrician thinks or will this get worse?? I have an older daughter that's almost 3 and always completed her milestones early but she didn't have the issue Presley is having. It's hard not to compare.

I guess I'm reaching out because I don't have anyone else to talk to about this. I don't know anyone who has this problem with their child...

Any advice or thoughts would be so appreciated.

Thanks, Nicola

Sara - posted on 12/13/2013




My son is two yeat old stil no self sitting, cannot standup his feet , doesnot raise his hands upward....now for a week he shows some resistance in his neck during physiothetepy....I have no diagnosis ,,, therapist says maybe he has hypotonia or muscular distrophy

Katherine - posted on 03/06/2012




A child is said to have low muscle tone — hypotonia — if his muscles are on the loose, floppy side. You may find it unusually easy to move your child's arms and legs when they are relaxed, or that he seems to slip through your arms when you pick him up. Although hypotonia is not a well-understood phenomenon, children with low muscle tone often have delayed motor skills, muscle weakness, and / or coordination problems.

While low muscle tone in an infant can be caused by a variety of fairly serious problems including hypothyroidism, Down syndrome, or a neurological problem, if your child was not diagnosed with the problem until after his first birthday, his problem is likely to be milder.

In some cases, doctors are unable to identify a cause for a child's hypotonia and it gets better over time without treatment. The clinical name for this form is benign congenital hypotonia. Interestingly, many children with benign congenital hypotonia will have a parent or sibling who likewise had low muscle tone during their childhood, suggesting a genetic connection.

Because your toddler needs to build muscular strength and agility, it's important that he be as active as possible. It doesn't much matter what he does — whether it's swimming, gymnastics, or general running around — as long he does something that gets him going. Pick an activity he likes to do, simply because he's more likely to stick with it if it's fun. Although physical therapy is sometimes recommended for children with low muscle tone, few studies have been done and experts disagree on how effective it is. Mild hypotonia typically improves over time with or without therapy.

You may, however, have to lower your expectations for your child's future athletic prowess, since children with mild hypotonia are more likely than other children to have coordination problems and may well be less adept at — and therefore less interested in — sports during their grade-school years. A non-competitive environment that focuses on enjoyment and self-improvement rather than performance or winning will help your child participate enthusiastically without feeling penalized if he's less agile than some of his peers. And it's important to keep in mind that even if your child isn't destined to be a Little League star, he'll be able to have a fine life in many other ways.

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