My 8-months baby girl has been diagnosed with pneumonia more than twice....

Faalagilagi - posted on 11/17/2009 ( 16 moms have responded )

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My daughter (8-months) has been diagnosed more than 3 times in the hospital w/pneumonia, than collapsed of her RIL (right upper lung), and then again pneumonia, and asthma. At home, we have a nebulizers, medications, and everything just home-care her w/out taking her to the hospital, but she has never gotten better.

I'm thinking of getting her in the states-to see a specific pediatrician who can reveal what's going on with her. At the same time, both me and my husband are worried about her, because this can be "scars, and adhesions"...if that's the right word for it. She might be healed now, and can get back to her five years from now.

FYI, Maryann goes to Day Care with my two year old daughter. We do make sure about the Day Care, and kids that's included in it.

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Lori - posted on 11/19/2009

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I had triplet girls 4 months early. We were in the nicu for quite sometime. They were on respirators for 94 days. They are 10 months now. Our girls have BPD and RDS which is a condition in their lungs. They are considered disabled for this issue with their lungs. I just wanted to give you some back ground first. My children have been in and out of the hospital with Pnemonia and Bronchitis. All of my girls lungs have colapsed at sometime or another. It's like everyday life around here. They also have steroid inhalers and breathing treatments they do. They were on oxygen at home for a lnog time, but recently came off. They will usually clear up in the hospital from the pnemonia when they get it, then when we get home it takes just a few days or a month or so and they start gettting it again. I want to share with you what happens with my girls just so you can see if this is happening. Reflux from what they eat comes up and they aspirate it into their lungs. Sometimes you cannot tell it's happening but they will start to rattle or weeze in their lungs. This can turn into pnemonia so quickly! You might ask your doc for some zantac or reglan. My girls took both. This put my middle baby at such a huge risk because she was in the hospital several times, so they performed some tests to verify the reflux. It's not acid reflux but just reflux in general. So, FYI if it's acid reflux the zantac can help if it's not acid relfux and just regular reflux the anacids won't help. The only thing that will help is surgery. They went in and did a Fundoplication on her so now she doesn't spit up anything, reflux, or even burp. Let me tell you it's the best thing we ever did and she hasn't had any problems since. I don't know if this info is what will help you but it definitely won't hurt to try some at least the zantac for a little bit to see if you start noticing a difference. You need to ask your doctor though so you can give the right dosage for her weight. Remember if she already has pnemonia right now you can still give her the zantac but you might not see a difference until you clear up the pnemonia, then once it clears and your still giving it to her, then you will see if she gets it again. If she doesn't then that might have been your problem. Also, if she is having reflux and you give the zantac and it seems to help some then she might also need another reflux med like reglan. Both these help my girls tremendously. Something that is VITAL to helping is mixing cereal in EVERYTIME when making her a bottle or any liquid you give her to thicken up the substance so it's less likely to come up!!!! I found this issue to be the main reason they reflux and get pneomonia!!!!!!! Even when giving liquid medicines will need to be mixed with formula and milk to get it nice and thick! My girls would choke on liquids and it's INSTANT hospital care because pnemonia hits so quickly. Also, ask your doctor to see if she might have some type of RSV. It's an infection that attacks the lungs. Look up RSV if you don't know what that is and get some info on it. My girls take Synagis shots every month during RSV season. RSV season starts in Oct. and ends in April. If your child goes to a daycare where there are children under 12 she could be a serious risk! Especially if she already is having lungs issues. You can learn more about the shots at www.synagisinfo.com There is a good possiblily she could have somesort of RSV infection. If she starts anykind of labor breathing go to the ER at once. This is a serious medical conditon. Well, I wish you luck! God Bless!! Oh, and just to let you know....she will eventually grow into some healthy lungs with time. My children are already a walking billboard for healthier lungs :)

Brandy - posted on 11/17/2009

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Have you ever thought about the products that are being used in your home and daycare. Just chaning out my household cleaning, bath and laundry products my son asthma was control so much better. We are not in the hospital every month for she asthma. Check out www.livetotalwellness.com/brandy... Good Luck and my thoughts and prayers are with you and your family

Tanya - posted on 11/19/2009

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My child was diagnosed with pneumonia and RSV at 9 mo. old. The doctor said chances for him to end up with asthma were very high. My son was on a nebulizer at least 3-4 times a year. I tried chriopractic treatments and for the last 3 years he has been on the nebulizer 1 time. He has been sick only a handfull of times compaired to what he was prior to chiropractic treatment. I feel this has helped him greatly.

Cherrie - posted on 11/18/2009

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i went through the same thing with my son and i found out that he has a mild case of Cerebral Palsy.. he can do lots of things on his own but there are times when he just needs his mommy to take care of him

Chasity - posted on 11/18/2009

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My family went through the same thing with our middle child. She was actually in the NICU (Neo-Natal ICU) right after she was born and stayed for a week because she had trouble breathing. She was eventually diagnosed with asthma after getting pneumonia and bronchitis numerous times. Her pediatrician gave us a referral to a pediatric pulmanologist (specialty in asthma/allergies) and that was in 2006. Ever since then, she rarely gets sick like she used to. Yes, she will have the occasional flare up, but it's not nearly as bad as it used to be. Maybe you should ask your doctor for a referral to a specialist. Hope this helps.

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Faalagilagi - posted on 11/19/2009

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Hey Lori, my daughter has the same problem with your triplets, and I'm glad and confident that now I know that it's not juts my child that's getting this. She has the same problem, it's just that out hospital has very limited medications, resources, doctors, and nurses. We have pediatrician's in general not specific pediatrician for a certain health problem. And yes, the same medications as you mentioned are the same ones that my daughter is inhaling. All I know, shed's been in and out of the hospital, taking azthmacort, e-mycin, azithromycin, inhalar, but was never prescribed any zantac, isn't zantac for stomach aches, or prevent from diarrhea? Cause I do take zantaz, because I take Predisone, for my RHD (Rheumatic Heart Disease). Anyway, I will look into it, and thanks alot for the help.

Brandi - posted on 11/18/2009

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have you asked the doctor about her heart? sometimes heart problems and/or acid reflux can sneekingly show themselves as asthma and allergy type symptoms. also try reducing or removing dairy from her diet I have asthma and some pretty severe allergies that dairy seems to make worse.

Faalagilagi - posted on 11/18/2009

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What do you mean by that, and what is Cerebral Palsy? Yes of course my daughter is like that, and I do cuddler her when she needs me. And I'm not that stupid to just leave her as the way she's been reacting, and all the complications she's been going through. I mean, I do really need help concerning my daughter's condition.

Faalagilagi - posted on 11/18/2009

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My daughter didn't just start on the coughing a few months ago. Two weeks after she was born, she started coughing. She was admitted then when she was 3 months (first time), then again 5 months, 7 months, and 8 months. During her second admission, we moved to our new home. It's not a new house, an old house that we're working on re-renovating it. From the time she was born, I have done so many ways trying to prevent her from getting exposed to many things. I'd stopped perfuming, lotion, baby powder, scented smell candles, sprays, etc. around her. I do clean when I get home after work, and at night when they're sleeping, change bed sheets, in the living areas, and where she'll crawl. I don't know if anyone has any second thoughts of the Enfamil powder for the infants, I don't know I was just talking with my husband last night and he mentioned that it could be from it. Like I said, she'll be okay for a little while after the medications than gets back to the coughing and congested again. Another thing, we don't have air conditioning, but we use the fan to cool up our house, and rooms. The environment at home is fine, it's just my husband, his 14 yr old nephew, our 2 yr old daughter, and his parents. She's not really exposed to other kids when she's at the house unless if we take her outside for a walk. At the Day Care, I make sure she does not sleep in the air contioning room, there's like 7 kids all together in the Day Care, and she's the only infant there. As of now, she's staying with her father at home, just trying to figure out where exactly this is coming from. But I would not sit and wait for things to happen....I'm indeed looking and searching for pediatricians' and talk about her problem before we make a final decision of getting her in the mainland.

Thank you all for the help, I really do appreciate the advices and I will look into it. If anyone knows where I can contact a pediatrician and can forward these informations to him/her that'll be much better.

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sorry mom must be heartbreaking and frustrating!! i agree with the mold possibility, that can make a lot of probs that are hard to get rid of..

Laura - posted on 11/17/2009

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The lungs are slow to heal. It sounds like she is needing meds to calm her lungs and allow them to heal and also work on a sinus related infection that is feeding the mucus in her lungs.

Brandi - posted on 11/17/2009

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Do you live in an older home?? Perhaps there is toxic mold or something of the like behind the walls. your daughter is young and the asthma could make her more susceptible to lung infections than the rest of you. If not, I would definitely get a second opinion from a pediatric respiratory specialist. Also, the asthma is likely to make her more susceptible to all of these other lung infection sin the possibility of mold. Anyway, good luck with her and I'm sorry to hear about all the problems she's having.

Rebecca - posted on 11/17/2009

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I would look in to her environment more. She might have an alergy to something either in your home or at her day care. I didn't even know there was a vaccine for it! I will be looking in to that now for my kids to prevent it. My son,2yrs had pnemonia a month ago and was also diagnoised with H1N1 so i'm glad we got his caught in time but he hasn't had it since. i used to do childcare adn the kids were always coming sick so i stopped doing it as i also have a 4 motnh old daughter. Look in ot the daycare to see what they do if a child arrives sick. Maybe another child there also gets it regularly and they pass it back and forth.

Faalagilagi - posted on 11/17/2009

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The vaccine you're talking about? I don't recall them injecting her with any pneumonia vaccine. All she had in the hospital was IV for her lungs, and inhaler at every two or three times if necessary. How long ago have you had pneumonia? I don't know, I'm just curious, and serious about this because she's too young, and her system is already exposing to many drugs and medications that could affect her immune system. Maryann takes the asthmacort, a puffer to help prevent the coughing (steroids). She have just completed the Azithromycin (steroid) helped open up her airway....with all these medications, is just too much for her.

The problem that I have noticed about her, after the prescribed medications completed, she'll be better for the next two weeks, and then the coughing hits back to her system, then wheezing, and then symptoms of pneumonia. Here in our island, our hospital is very limeted with medications and stuff, as well as doctors and nurses. I know it's very expensive with the hospital out there, but I do not care with budgeting...as long as I find a Pediatrician who can help care for my daughter, and get her health problem fixed.

Again, you've been much of a helping friend....this is why we're called mothers...who care, and also share our love for the little ones.

Brandy - posted on 11/17/2009

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Has she been vaccinated for pneumonia? I had it 6 times in 2 years then I found out about a vaccine that protects against 23 types of pneumonia and got the shot and haven't had it since. (2 years ago) I don't know how old they have to be to get that but there is one that protects against 7 types that they can have starting at 6 months so maybe you can start out by getting that one and ask how old she has to be to get the one I got. Pneumonia can be reoccuring throughout life once you've had it once although there are people who only get it once and never get it again and like you said it could maybe not happen again for 5 years or it could happen again next month. (hopefully not) And it is probably why she has athsma too. Lungs take a long time to heal, especially ones that haven't even finished growing yet. I was 21 years old when I got that vaccine and it took me probably more than 6 months to stop having an occasional wheeze (more so at night and in the dry seasons) and chronic cough. So hopefully when she stops with the pneumonia, the asthma will go over time. I haven't used a puffer in almost 2 years. Hope I could help.

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