my son has a genetic syndrome anyone else

Charlotte - posted on 01/13/2009 ( 3 moms have responded )

7

19

0

my son is being investigated 4 a genetic syndrome, he also has other little bits and pieces going on, hopefully we should know by may what syndrome he has got.

3 Comments

View replies by

Becky - posted on 10/28/2009

96

2

12

Hi Charlotte,

Snap! I'm going through the same with my 9 month old son. Have you had results yet? We have been waiting 5 months for some results for a rare syndrome test that was sent to Italy. It is due back any day now. The waiting is a nightmare! If you would like to know more about my story, you could visit my community 'Undiagnosed Syndromes'

Renee - posted on 01/13/2009

5

5

1

Quoting charlotte:  Hello I have 2 boys with a genetic syndrome called DiGeorge.. What's going on with him? I can possibly help you find some answers. Genetics is a big thing in our family lol it sucks too.. Good luck. Email me RENEE

my son has a genetic syndrome anyone else

my son is being investigated 4 a genetic syndrome, he also has other little bits and pieces going on, hopefully we should know by may what syndrome he has got.


 

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms