Polymicrogyria

Megan - posted on 04/10/2015 ( 1 mom has responded )

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my son kaleb just turned one and has polymicrogyria. He has very low muscle tone and cannot hold head up and has very low muscle tone in body. Doctors have all told me have no idea what he will be able to do physically and I just have to wait. It is the hardest thing ever knowing my son might never be able to be a normal baby. Any suggestions how to deal with this?

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Stephanie - posted on 04/18/2015

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There is nothing too hard for God, I say pray about it. The doctors and nurses are the ones we look to for answers and healing. However, the doctor's prognosis or lack thereof is not very promising. So, if it were me and my child I would place it in God's hands he may grow up to be a healthy baby you don't know like you said, but God knows I think you should seek counseling for your own mental state and just trust God.

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