Does anyone know anything about hemophilia?

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Anne - posted on 01/21/2011

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Hi, I live in Australia and my step-dad has severe hemophilia. You should not have to change your lifestyle unless you are really into participating in a very active lifestyle. There is absolutely no reason he would not be able to have children of his own and lead a reasonably normal life. If common sense is used and he is taught to manage his condition properly he should grow up normally.

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Michaelagh - posted on 06/02/2013

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My son who is 2 just got diagnosed with hemophilia Severe ...oh joys..would like to chat with some other parents who kids have it..

User - posted on 01/12/2009

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Thank you!  We have already contacted our insurance, and our local chapter.  We are still not sure if this adpotion will go thru, but we are so hoping.  I will let you know.  Thanks again, your email gave me comfort.

Lisa - posted on 01/08/2009

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I'm assuming since he is taking 3 shots per week that he is a severe hemophiliac.  My brother was also severe.  He was a pretty normal kid.  He wasn't able to play competitive sports, but he did run track for a bit until he damaged his ankle and the doctor told him he had to stop.  It was harder when he was small because he didn't understand he had to protect himself, but the older he got the easier it was.  He did get frustrated sometimes because he had to be more careful than his friends, but he had great friends who understood his condition.  He went everywhere we went....camping, hiking, amusement parks, etc.   My mom did all of his infusions until he was about 12 or 13 and then he learned to infuse himself. 



 



There is a substantial medical cost involved in raising a child with hemophilia.  The factor isn't cheap.  I don't know what the circumstances of his adoption may be, but you will want to check with your insurance company regarding their policy on pre-existing conditions.  Of course if he is already medically insured, then that should be a non issue. 



 



What state are you in??  I believe most states have a local hemophilia foundation chapter.  You can get involved in that and get to know other parents/families in a similar situation.  I applaud you for considering adopting a child with special needs.  I work with children with special needs because of my brother and it's been one of  the most rewarding experiences of my life. 



 



Please let me know if I can give you any more info!

User - posted on 01/08/2009

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Lisa, We are thinking of adopting 2 more children, one of which has hemophilia.  Of course we are concerned.  We have been reading as much as we can, but I would really like some real life stories.  The child is 2, and has to take shots 3 times a week.  What can we expect?  Will we have to change our lifestyle?  Will he be able to be a kid?   

Lisa - posted on 01/06/2009

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My little brother was a hemophiliac and my family is very involved with our state's hemophilia foundation.  If you have any questions, please feel free to contact me.

User - posted on 01/06/2009

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Yes, thank you.  We are thinking of adopting a child with Hemophilia, and I wanted to know more about daily life, and personal care. 

Laurie - posted on 01/05/2009

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have you tried going to the website www.thereforyou.com It is a resource center all about hemophillia.

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