Heartbroken for my 4yr old with a tic disorder

Carla - posted on 03/25/2013 ( 8 moms have responded )

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My son has been clearing his throat since last October. He was treated for allergies. Well the last 2 weeks, his throat clearing is accompanying a tic where his hands involuntary jerk. He has an appointment to see a neurologist on 4/3 but the wait is killing me because I know something is wrong. I am so sad for my child because its affecting him where he puts down his leap pad because of the hand jerking and he even told me he needs to see a dr. That broke my heart that he knows something is wrong. Does anyone else have a toddler suffering with a tic disorder?

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Kelley - posted on 11/02/2015

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My son is 8 and has ADHD but is typical otherwise. He constantly clears his throat. Its a tic that I don't know if it is associated with a tic disorder, the ADHD or is a side effect of Focalin. Otherwise he is happy. Still searching myself. My son had a miserable (undiagnosed) year of kindergarten. I encourage you to have your child tested by a child psychiatrist like I did and go through a battery of tests to know what the problem is. Many pediatricians see kids with ADHD but they can't diagnose it.

Good luck.
Kelley in Texas

P.S. In my opinion and my observations as a special ed teacher, I swear there is some connection between ADHD and intelligence. So many gifted children have ADHD. There are two gifted children in my family tree with ADHD and documented giftedness. So, maybe your child will have tics but will excel in some academic area.

KATHERINE - posted on 09/26/2013

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Thank you so much for your answers! The problem is that I don't know exactly what he has. It will be transient, chronic or Tourette? I am waiting for the appointment tomorrow. I will let you know ... Thank you again!

Carla - posted on 09/26/2013

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I honestly am not sure. But you can perform daily activities and live with Tourettes. My son is 4 and attends preschool at a elementary school, he does his homework with no issues and with his hands ticking at times. The neurologist did say my son's is mild but she knew as soon as we walked in because he does eye blinking too at times. But my son lives everyday with Tourettes. In the beginning he would have trouble holding his leap pad steady with his hand ticking but he's a boy. So he mastered video games with his tics and all. Just from March until now, I have seen him have no tics and frequent tics but he's ok. They don't hurt him. Just know whatever the issue is, make your son feel safe. Let him know he will be ok. That helped our son. He was scared at 1st too. My son's is a motion motor tic. Monitor when your son seems to have them the most and we would video tape when our son had frequent tics. That helped the neurologist. The pediatrician never saw our son have a tic so he actually told us he wasnt convinced it was a tic. It was a long journey. I'll be honest, but knowing makes it so much easier to manage.

Carla - posted on 09/25/2013

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Carl's tics are different too. Soemtimes he clears his throat, sometimes he claps, sometimes he hits his self by accident, it varies from time to time. And just like your son, they come and go. The excitement from the vacation may have triggered it. I only sat that because that is when it seems like my son's are high, amusement parks, hay rides, etc, fun stuff gets him ticking. He used to get them playing video games but his brain I guess adjusted, not sure. Keep all his appointments and I know its scary. I was so scared too. When you see a 4yr old having stuff hooked up to his brain, its alarming for anyone. But kids are so strong and Carl didnt even cry thru the scans. Carl is now having the "clearing his throat" tic. I hear it all day long but you get used to it. It will go away and be something else in a couple weeks. But I say keep the appointments because they give you all the education and information you need to get through and cope. After finding out the meaning of Tourettes only being like 1 or more tics for a period of 6 months, I was so relieved. The more you read, the more you can prepare yourself.

KATHERINE - posted on 09/25/2013

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Although my English are not good, I will try to tell our story. One night, when my son was 4 1/2 years old, started to make again and again a strange movement (he was twisting his foot, then he was twisting his hand finger and then he was pressing his tongue inside of his cheek). We took him to the hospital, where he stayed for 3 days. The diagnosis was movements that seemed like tic, but because our son several times announced the movement before doing it, they revered us to the paedopsychiatrists of the hospital. They followed our son for 4 months. Meanwhile after a month he stopped doing the movement. They told us that it was a movement he thought to do just for relaxing, like other children put their finger in their mouth. We believed them. Now after 2 1/2 years, the day we returned from our vacations he started doing the movement again. At first the feet and the hands separately and now all the movement. He keeps telling me that something is telling him to do his feet. We took him to a neurologist, who told us that it is an incident tic disorder that we don't know how it will progress. The last days he told me how he is supposed yo live with his feet problem, that stops only when he is playing and sleeping and he asks me all the times someone to play. When somembody comes he stops. I started to think if he is doing this on purpose. I closed an appointment with a paedopsychiatrists. Few minutes ago I listened to him making a noise like clearing his throat. He never had made it before. I don't know what to think.

Carla - posted on 09/25/2013

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Hi Katherine. Its gets easier. I know your worried because I was a mess in the begining but it has gotten better and easier. Carl started preschool and it has almost been a month. He is able to get through the day and complete his assignments without medicine. But then again, right now, no tics. He had a high point of tics in August but it died down again. They come and go but really come with excitement. We went to Storybook land, and all the lights and music triggered his hands and neck jerks but we got through it. He goes back to the neurogist in October just for a check up to see how he is doing in school. Let me know how you make out with your son. And good luck! But your son will be ok. He'll get through it. And with time, you, him, and your family will adjust. Carl still clears his throat and my 2yr old daughter still mimicks it, but the whole family barely notices the tics.

KATHERINE - posted on 09/24/2013

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How is your son now? My 7 years old son developed this hand jerk about a month ago and I am so worried.

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