I have a 3 mos old son. He failed his hospital hearing screening 2x. So he was refered for ABR and was done just recently and the result they said was that he has mild to moderate permanent hearing loss. I don't know if I'm still in denial but before his ABR test was done, we did test his hearing by clapping our hands when he's asleep and he would starle and wake up. Also when he's asleep and his older brother makes loud noise, he will startle,wake up and cry. He also coos in response when we talk to him. Now my question is...does ABR test can be wrong? .....hopeful mom!

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Sarah - posted on 02/15/2015

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Yep agrees with Sarah E. You will do a great job. It takes a bit to adjust to the idea and in some ways grieve for what you wish could have been. But the future will hold lots of joy and specialness too. Hang in there. :)

Sarah - posted on 02/15/2015

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You can do this! It is always a blow to find that one of our children may have a challenge that was not anticipated. You will figure it out and navigate your way to the best services to help your son achieve whatever he desires.

Sarah - posted on 02/14/2015

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Most infants are screened in the nursery using the OAE (otoacoustic emissions) test. Many babies do not pass due to congested tubes. If a baby is discharged without a "pass" result, they get referred for a ABR (Auditory Brainstem Response) test. According to your results, your child has mild to moderate hearing loss. Was it both ears or were they not able to determine? Has he had the anatomy of his ears evaluated by an MRI? The ABR is quite a reliable exam. You should be getting referred to a hearing specialist or an EENT who can help you understand the extent of the hearing loss and the potential treatment plan.
I know it is scary but there are many ways to help with mild hearing loss to even profound deafness. You child may need hearing aides, speech therapy or he may accommodate without intervention depending on the actual deficit. Try not to panic, just one step at a time and be thankful you are finding out now, not in three years as Sarah H pointed out.

Sarah - posted on 02/14/2015

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The hearing test they do is more intensive. You are not going to see the results of the hearing loss until he gets older. You will start to notice it when it starts to affect his speak or his chewing. You really want to listen to the recommendation that ABR is giving you. This will help so he does not have other developmental delays due to the hearing loss......like the speak or the chewing. I use to watch a little boy he failed his hearing test at birth, but no other follow up was done. He could follow directions, look at you when you said something. Everything seemed normal until he was 2 yrs old and was not advancing in his speech like he should. He was unable to speak clearly and could never say the ending of any word. He was hearing a muffled sound his whole life. So he was able to seem like he heard things but in reality he had hearing loss. It was not until he got into kindergarten that his hearing got tested and he got hearing aids. By this time he was already behind his peers in learning due to the hearing loss. Imagine if he could hear as he was learning all those things way back when.

I know it is heartbreaking, but the good thing is that there is a fix.

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Kbt71475 - posted on 02/15/2015

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You just don't know how your encouraging words mean to me and my husband. I'm so thankful I found this site in the internet... We're still waiting for our pediatrician to refer us to an ENT doctor bec our son just had his ABR last Friday... But I'll take your advice, we will do everything for our son. We will do every test and every procedure that he needs. Thank you so much!

Kbt71475 - posted on 02/14/2015

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Thank you Sarah E. And Sarah H....my son's ABR test was just done yesterday. Yes they recommend us to see ENT DOCTOR which we are already waiting for our pediatrician to recommend. And yes the audiologist recommend that our son will have to use hearing aid...thank you so much for your post ...it is sinking in now. I need to be strong for my son. I'll keep you posted with my sons journey to this... We'll support him all the way.

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