Celiac Disease

[deleted account] ( 8 moms have responded )

I have a 3 1/2 year old with Celiac Disease, and I am looking for parents to network with. Anyone interested? Most support groups focus on adults, as Celiac is typically diagnosed in early adulthood. ANY help would be most appreciated!!!

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Colleen - posted on 01/30/2011

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Hi Lori. You are lucky to find a bakery that caters to allergen-free products. Yes, these products do seem a bit dry (at least the ones I've tried)...and some of the flours used in these bakery items have a different taste...but they are better than not having any options at all. I can't get my husband eat them. More importantly, though, my daughter likes them (and it's great to have an option for her...especially at birthday parties).

User - posted on 01/30/2011

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Thanks for all the great snack info. Today, we went to a bakery that is 100% vegan, gluten-free, dairy-free, egg-free and soy-free. The cupcakes were not bad, just a little dry. Is that normal for GFCF products?

Colleen - posted on 01/30/2011

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Hi. I just wanted to post a clarification. I noticed that Trader Joe's has several types of banana chips...some of these are unsuitable for us (due to the equipment they are produced on). The banana chips that we buy are "Trader Joe's vacuum fried banana chips" -- bananas and palm oil in the ingredients....

[deleted account]

Knikkinik has animal crackers that are gluten, soy, and dairy free. They are great. We get them wholesale as of now (with 2 kids with various allergies) because we go through tons of them. We also leave a box for sunday school and for snack for the couple of programs the kids are involved in. My #1 reccomendation!! They also have graham crackers and sltine type crackers that are good also. :)

Colleen - posted on 01/25/2011

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Hi. Snack foods that have worked for us include Rice Chex and Corn Chex (thankfully my daughter doesn't have a corn intolerance), "Gorilla Munch" cereal, Trader Joe's brand banana chips (just dried bananas and palm oil), apple slices, and bananas. Enjoy Life foods has some allergen-free cookies and other products. The best advice I have, though, is to read the labels on everything. I am surprised at how many items include ingredients that cause my daughter problems. Many of the stores we shop in have a gluten-free aisle ...but sadly the items still don't work for us because they contain dairy and soy.

User - posted on 01/25/2011

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I am sorry to hear about your 3 yr old. I have a 19 month old with symptoms that are similiar to Colleen's(in a previous post.) She has abdominal symptoms after she eats wheat, casein and soy. All the blood and stool samples are normal, and we have decided not to do the biopsy. I am having trouble finding snack food for her. She does not like any of the gluten/casein/soy free snacks. any suggestions?

Kristy - posted on 01/21/2010

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Hi first and foremost i myself have wheat intolerance which is similar but not as aggresive. I have found that cutting out all forms of preservatives i can has worked the best the biggest one to watch for is 282 its in anything that is made to last longer then a few days. It is a hard road for both the family and the kids, because it means that parties have to be watched carefully and school as well. We have a pretty active program in our daycares and schools here in AUS, each childs allergy is clearly posted on the room wall. Google it and see if you can find a site called kidhealth.org, they have heaps of sites that you can go to from there and alot of advise areas. Good luck

Colleen - posted on 01/11/2010

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I'm sorry to hear your child has celiac. My 3-year old daughter has a severe gluten intolerance...but celiac and Crohn's were ruled out with various tests (colonoscopy and blood tests). She's been "diagnosed" has having toddler irritable bowel syndrome. (We have been seeing a pediatric gastroenterolgist since she was 5-weeks old. We changed gastroenterogists about a year ago.) If she ingests even the slightest amount of gluten, dairy, or soy, she has abdominal pain (and other symptoms) for months until her gut heals. Thus, while we don't have the exact same diagnosis... I would love to share ideas on dealing with gluten issues, while still maintaining a normal childhood. (My biggest challenge right now is making sure she doesn't "try" a friend's food. It's easy to do when I'm watching...but she has a strong independent streak and school will be starting in a couple of years.)

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