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DiGeorge Syndrome

I am trying to get with some other parents and relatives of DiGeorge kids. I want to try to see what kind of problems they have and if in school what kind of school problems...


DiGeorge syndrome? Any info please

A friend of mine just had a baby and he is diagnosed with digeorge syndrome, all I know so far is he had a heart deformity, had surgery, and is facing a long nicu stay. I'm...


Heart Problems/Di-George Syndrome

Hi everyone just wanted to introduce myself, i am Michelle and have 3 children, liam 9, adam 7 and matthew 5 and half months. Matthew was born with severe heart defects,...


New to DiGeorge/VCFS

Hi, My name is Melissa, I found out about 2 months ago that my 4 year old daughter has DiGeroge. Although deep down I knew there was something wrong, it is still all too...


Digeorge Syndrome?

if you or your child have this syndrome, can you please help me with some information and how to help a child with this syndrome. Thank you.


undiagnosed syndromes?

Hi, I have a beautiful 3 month old daughter who is struggling with several health concerns. She is hypotonic (still lacks head control), has GERD with sandifer syndrome, and is...


my son has a genetic syndrome anyone else

my son is being investigated 4 a genetic syndrome, he also has other little bits and pieces going on, hopefully we should know by may what syndrome he has got.

Started by Charlotte on 01/13/2009 in Stay At Home Moms

Last update on 10/28/2009 by Becky


homeschooling with digeorge

Hi! I have a 12 year old son with DiGeorge syndrome. He will be going into middle school next year. I am not comfortable with what they have to offer. So I'm considering...