DiGeorge syndrome? Any info please

A friend of mine just had a baby and he is diagnosed with digeorge syndrome, all I know so far is he had a heart deformity, had surgery, and is facing a long nicu stay. I'm...


DiGeorge Syndrome

I am trying to get with some other parents and relatives of DiGeorge kids. I want to try to see what kind of problems they have and if in school what kind of school problems...


Heart Problems/Di-George Syndrome

Hi everyone just wanted to introduce myself, i am Michelle and have 3 children, liam 9, adam 7 and matthew 5 and half months. Matthew was born with severe heart defects,...


New to DiGeorge/VCFS

Hi, My name is Melissa, I found out about 2 months ago that my 4 year old daughter has DiGeroge. Although deep down I knew there was something wrong, it is still all too...


my son has a genetic syndrome anyone else

my son is being investigated 4 a genetic syndrome, he also has other little bits and pieces going on, hopefully we should know by may what syndrome he has got.

Started by Charlotte on 01/13/2009 in Stay At Home Moms

Last update on 10/28/2009 by Becky


Digeorge Syndrome?

if you or your child have this syndrome, can you please help me with some information and how to help a child with this syndrome. Thank you.


undiagnosed syndromes?

Hi, I have a beautiful 3 month old daughter who is struggling with several health concerns. She is hypotonic (still lacks head control), has GERD with sandifer syndrome, and is...