PVL and CP support wanted

Hello, My daughter Miriam has reciently been diagnosed with PVL and CP after a MRI. She will be two in a couple of weeks and we have always known that something was not right...


Confused...what is PVL/CP

We have just found out that my son has PVL. He had a MRI and they discovered white matter in his brain. The doctor told us he had PVL, but then he also said something about...



My son initially had a brain scan at one week after birth, 31wks+ that revealed a minor grade 1 brain bleed on his right ventricle. they weren't worried but wanted to follow up....

Started by Madeline on 12/03/2010 in Moms Of Preemies

Last update on 04/19/2015 by Meenakshi


Children with CP

If anyone has a child with CP and needs someone to talk to I would be more than glad to talk to you. My son Jayden has CP and is almost 2 still not walking. He goes to physical...


Mild cerebral palsy

Hi my youngest twin who is almost 10 months old seen his peadatrician last week and he said he believes he has mild cerebral palsy after every thing i have read on the subject I...



Hi, My name is Jen, when my daughter turned a year old she was diagnosed with cerebral palsy, she is now 17 months and I still don't see the signs of CP, she is very smart, she...


Periventricular Leukomalacia

I am a somewhat new mother of a 27 weeker that weighed 1lb 8oz at birth, during his 3 month stay in the NICU, he developed a blood infection and meningitis that resulted in a...


Looking for support

I am a mother of a son born at 26 weeks gestation(14 weeks to early) weighing only 1 lb 9oz. 11 inches long. He is now 20 months old and weighs 19 lbs 3oz . He crawls and is...

Started by Carrie on 11/06/2008 in Moms Of Preemies

Last update on 04/02/2013 by Sharon