new here

Hi everyone. My 18 month old daughter, Adlai, has 22q11.2 deletion syndrome. It is a syndrome with many symptoms. So far Adlai only has the Tetralogy of Fallot which was...



Hi everyone, my name is Jennifer Jopling and I am the mom of two beautiful children. I have a 6 year old daughter and a 41/2 month old son. My son Riley was born with...


19 weeks pregnant

When I was 19 weeks pregnant they had me go in for my ultra sound when my doctor reviewed it they noticed a bright spot in the heart and a dilated kidney. She said that she...


Tetralogy of Fallot

Hello! I'm new to this group... My daughter was born with Tetralogy of Fallot, and I was so glad to find this group. I hope to meet new and great people.


ASD VSD and Pulminary Stenosis

my 10 year old daughter has these defects...has had them all of her life...she is a little under weight, and gets out of breath easily...we chose not to have surgery at 15...


Anyone have heart babies?

Hey everyone, Just seeing if anyone has heart kids as my little girl has heart disease. She was born with her heart on the opposite side of her chest and her ventricles flip...