There is hope for Tuner Sydrome. Here is my story.

Lacy - posted on 07/12/2015 ( no moms have responded yet )




I'm Lacy, and new to circle of moms. I came across this page, and I felt like I need to share my story. I see so many people that have very sad stories, and it breaks my heart. I recently had my baby girl whom also has Turner Syndrome. Parker is now 5 months old, and is actually doing pretty well for everything she gas been through. I found out that my daughter had TS when I was 20 weeks pregnant. They noticed by the abnormalities of her heart, measuring very small, and immediately sent in blood work for testing. It came back positive for Turners. At this point, I had no idea what it even was. All I knew was I thought I was going to lose my daughter, my first child. I was terrified. They pulled my fiancé, and I into the genetics counseling room and the lady sat down and started telling us all this awful stuff that seemed impossible for a baby to make it through. She said my baby had a 1% chance to live, and was pushing abortion strong. She said my daughter had fetal hydrops, coarctation of her aorta, a hole in her heart, and a cystic hygroma on the back of her neck. I felt my world crash around me. I felt like I was sitting in an empty room, but their were people all around me. Abortion was never a thought thay crossed my mind. I told her that abortion was not an option for me, and that if she died it would be because she couldn't fight any longer, not because I ended it without giving her a chance. So they kept me closely monitored of course over then next 20 weeks. Around my 37th week I went for a check up, and my blood pressure kept getting worse and worse. I ended up having pre clampsia, and my doctors decided to enduce me at 39 weeks. I was in labor about 23 hours, and it took me about 15 minutes of pushing, and my precious daughter was alive before my eyes. I cried from happyness, and relief. She was a beautiful 6 pounds even, and exactly 18 inches long. I was so happy. She even got to stay in a normal room because of how well she was doing after birth. After we left the hospital of course her cardiologist monitored her close because of all her heart conditions, and finally decided it was time for her to have heart surgery at 4 months to fix her coarctation. We drove 4 hours away from home to Charleston SC at MUSC for her surgery. We were their for a week, and then came home. Now my baby girl is doing very well, and is almost completely healed from surgery. :) I'm telling you lady's these girls are truly something special, and such fighters. They are proving doctors wrong every single day. Yes, their are so many different things that can go wrong but every turners case is different. It is all so worth it. So all of you lady's who are pregnant and not sure of what to do, just take it day by day, and your baby girl will be in your arms before you know it. I hope my story helps some of you. If any of you have any questions just add me on facebook under Lacy Davis, or send me an email at 💜

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