Victoria Rose is a silent angel of Rett Syndrome

Rett Syndrome is a neurodevelopmental disorder with no know cure.It randomly attacks little girls at the age of 6-18 months and robs them of their ability to walk, talk and the use of their hands. It bends their spines,weakens their bones and causes seizures and epilepsy. They have trouble breathing swallowing and regulating their basic functions of heart rate and blood pressure. Rett Syndrome leaves our girls profoundly disabled and totally dependent on others of their often short lives. They are often over-looked as Autistic or have Cebral palsy.


hi again

Hi my friends. i wish it was under different circumstances that we got to meet. My husband was telling me this morning that our baby is so special that she is going to be the...


Retts Angels Hey. Im looking toget in touch with other parents in south africa, as we would like to start a support group as well as fundraising!!!...



Victoria's feet are starting to curve the right one is curving more than left. Victoria is walking but very unsteady. She puts her weight on the side of her foot so now she has...