Anyone dealing with a deaf infant??

Amy - posted on 08/01/2009 ( 10 moms have responded )




Well we just recieved the diagnosis that our son is completely deaf in both ears, and we have now started the process of a specialist. He is only 4 months old and we are "glad" that we have caught it early, but that doesn't help the emotions of this situation. We want the best for him, but I have found myself questioning is what I think is best, what IS best? I guess my questions there anyone out there that has experienced this and how can I deal with my emotions, in order to make the right choices. Any advice or suggestions are greatly appreciated.


JuLeah - posted on 11/09/2011




Ohhh, I am so glad you caught this early. I love it when parents are so on top of things.

Reach out to the deaf community if you haven't already.

That will be his community, so get to knwo them. His playmates, his teachers, his best friends will be foudn there

Get CC for your TV - not to early to do that now - let him grow up with it

Take sign language - the whole family - can't tell you how many kids I know that have never had a conversation with their parents - they sign, as they learned it at school, but their parents don't. These kids don't even know their parents names.

A lot of medical experts will give you a lot of advice on how to make him 'normal' how to give him a 'normal life'

That's a bunch of BS. He is deaf - the more time and energy you spend in an effort to 'make him nromal' the stronger the message of 'we don't accept you as you are' 'we want to change you' 'we don't like that you are deaf'

People who are deaf work as teachers, dancers, doctors, race car drivers, artists .... there really is no field they can't work in ....

But, talk with the 'real experts' the people in the deaf community ...

Give him as much language as you can .... add technology to your home so he can grwo up with that too ... lights that flash when the phone rings, or when there is a knock at the door ... things like that

Watch the TV show switched at birth -

Rent viedos from the library - story time sign ...

Good luck

Luisa - posted on 04/07/2011




Hi Amy, we have also just found out our beautiful 2 year old daughter has severe-profound hearing loss...we are emotional wrecks & struggling to overcome the fear & sadness this news has given us but trying to be as proactive as possible to help her however we can..I wish your son & your family all the very best for the future & I'm sure all of us will get through this very emotional time & be the best parents ever to our amazing little angels xxx

This conversation has been closed to further comments


View replies by

Radha - posted on 11/09/2011




Hi Amy,
My 7 week old grandson was diagnosed as profoundly hearing impaired about 3 weeks ago. We are taking him to an ENT this Friday. Needless to say we are all sad and not sure what to expect. I am also looking for suggestions and information from parents who have gone through or going through similar experience. Wish you the best with your child's treatment.

Michelle - posted on 08/01/2009




Well I don't have any experience with a deaf child, but I was and still am hard of hearing. When I was little I would read people's lips to understand what they were saying. I had nerve damage and it progressed to a point and stopped. I still have a hard time with low voices but I do alright. My parents got me into learning sign language, which really helped. Good luck!

Jackie - posted on 08/01/2009




start teaching him sign language, that will really help. My kids aren't deaf but I taught them it anyway, it helped them say what they wanted before they could talk and it really helped, they didn't get so frustrated. But teaching your son sign language would be beneficial anyway. When he gets older you can look into the hearing aids they have and you can always teach him to read lips so he doesn't always have to sign.

Jessica - posted on 08/01/2009




I have three hearing impaired children. Start by making sure that you get help by people that work with children this has worked out great for me. your lucky that you caught it early. also start by getting help for your self on american sign lang. you need to be able to talk to your child as soon as he learnes and it will all come to you if your strong remember that you are your childs voice. he needs you to be dtrong for him.

Erin - posted on 08/01/2009




i don't have experiance with having a deaf infant, but my in-laws and some of my hubbys aunts and uncles are deaf and hard of hearing. try to find out if there is a deaf club in your area, i've been to several functions with my hubby's family. there are people there who are deaf with hearing kids and hearing parents with deaf children. they will be able to help you or know who can help you deal with what you are feeling and teach you what you need to know. good luck!

Krista - posted on 08/01/2009




I was declared legally deaf as a child..which isn't to say I was completely deaf, but enough that I could be declared it. Unlike your son, I got better, but that doesn't mean it wasn't emotionally hard for my mom. Just treat your son like a person and make the decisions that you would make if he was able to hear completely. Trust your judgement in all situations. Just because he can't hear doesn't mean he's not capable of a perfectly wonderful life. Will it be hard? Of course, but you deal and you move on. Good luck to you.

Gemma - posted on 08/01/2009




I am very lucky and have not got any experience of this. I hope you can get the help and advice that you and your son need. Good Luck and keep us posted.

Melissa - posted on 08/01/2009




I just recently found out that my month old son doesn't have hearing in one ear and barely in the other. we have started speech therapy along with them teaching him Sign Language.

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms