Compassionate Care??

Devon - posted on 10/23/2014 ( no moms have responded yet )




So, my son Emmett was delivered via emergency c-section. The cord was wrapped once around his abdomen and once around his neck. They'd been doing NSTs because he'd stopped growing in the last month of pregnancy. They now believe this was due to a virus. He was taken to the NICU and resuscitated. For the first 6 days he only seemed to be improving, but then he had a few seizures. They sent him out for specialized care at UCSF. There he had a SWAT team of doctors. The neurologists did an MRI and found extensive, global damage to his brain. We had a meeting with the whole team yesterday and they said they thought "compassionate care" was the best thing for him. Basically, his brain is damaged so badly he doesn't know how to suck anymore. When they say "compassionate care" they mean to send him home with no tubes or monitors, and if he learns to eat, then he learns to eat... But if he doesn't, then nature will take it's course... So he could learn to eat, we could let him pass away, or we could have a tube surgically implanted in his stomach. He'll never walk, talk, sit up, or eat on his own. Is this even life? I can't say I'd ever want to live like that.

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