External hydrocephalus and developmental delay

Shea - posted on 09/23/2016 ( 2 moms have responded )




Hi there. I am new to this website but was unable to find any support elsewhere so thought I would find someone to identify with here. My son is 7 months old. He has external hydrocephalus or benign extra axial fluid. They suspect the spinal fluid will absorb on its own, however he also has a developmental delay with unknown origin. The neurologist is unsure if it is connected to the extra fluid as his MRI showed no abnormalities. My son cannot do tummy time for more than 1 minute, cannot bear weight in his arms, has low muscle tone in core so is unable to sit or roll over. Has anyone gone through anything similar to this? If so, please share. Thank you


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