Has anyone ever heard of a birth defect called Schizencephaly?


Sheila - posted on 10/04/2013




My adopted son was diagnosed with schizencephally around 6 months old. His is in his right side only and he has not had any seizures. He has left side neglect and has had a few corrective surgeries: one for club foot on his left foot and one to staple the growth plate in his right knee so his left leg could catch up.

When he was first diagnosed, they said he could be a vegetable and tube fed. That was not an acceptable assessment to me. I started early intervention with physical and occupational therapy and worked with stimulation with massages. I also learned what sign language I needed to help him communicate his needs.

He is now almost 14 years old and functions in a normal Jr High School.


View replies by

Ralene - posted on 03/22/2012




my baby has been diagnosed with a severe case of Schizencephaly, His brain stem is normal, which means he will do all involuntary motor functions but the Dr. keep saying we have to wait and see about the other, do you have any idea what all he will go through or anything there is I can do after he is born to make sure he has the best life possible?

[deleted account]


"A developmental disorder of the brain characterized by abnormal slits, or clefts, in the cerebral hemispheres. Schizencephaly is a form of porencephaly.

Individuals with clefts in both hemispheres, or bilateral clefts, are often developmentally delayed and have delayed speech and language skills and corticospinal dysfunction. Individuals with smaller, unilateral clefts (clefts in one hemisphere) may be weak on one side of the body and may have average or near-average intelligence. Patients with schizencephaly may also have varying degrees of microcephaly, mental retardation, hemiparesis (weakness or paralysis affecting one side of the body), or quadriparesis (weakness or paralysis affecting all four extremities), and may have reduced muscle tone (hypotonia). Most patients have seizures and some may have hydrocephalus. "

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms