Infantile spasam and development delay

Anitha - posted on 01/11/2016 ( no moms have responded yet )




My daughter had a severe chickenpox at her 6 mos and at her 7th month she had a seizure,she was diagonised by Infantile spasam. They took MRI scan it says her brain structure is normal and then they took EEG ,it comes something is abnormal in her brain waves. After that we started Prednisone,the seizures controlled but not fully,and then we started Vigabitrin the seizures stopped. She is still under medication, we are weaning her medicine now,it's gonna stop in couple of weeks.Last time when we took her EEG in her 14months it comes normal(it says no abnormality in her brain waves). She is still behind in her development that worries me a lot..she is now 15 months,she is crawling,not walking ,talking,not listening when we call her name. She is tired quiet often. I checked with paediatric they r keep saying be patient. I get stressed every day.Please share with me your experiences. Thank u

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